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There is great news to share about a newly formed formal parent organization for Glut1 Deficiency in Spain.  Their mission is to share information about Glut1 Deficiency with hospitals, research centers, therapists, patients and families.  They also will work to support patients and families with Glut1 Deficiency and other diseases in the use of a ketogenic diet. They have already held their first conference in December, welcoming Dr. Juan Pascual as a guest speaker.  Glut1 mom Isabel Pastor, a volunteer for the Glut1 Deficiency Foundation, has been one of the founding members in helping get the Spanish group off and running.  You can find and follow them on Facebook!

 

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