The Glut1 Deficiency Foundation is a nonprofit family organization run by volunteers and dedicated to helping the G1D community by educating others, raising awareness of and advocacy for Glut1 Deficiency, and by supporting researchers as they work for better treatments and an ultimate cure.
President – Jason Meyers
Jason is a registered professional engineer and holds a degree in Mechanical Engineering. He has been employed with the Louisiana Department of Environmental Quality for 17 years. He lives in Denham Springs, Louisiana with his wife Keri, two sons, Cote and Scott, and one daughter, Katie. Katie was diagnosed with Glut1 Deficiency in 2008 at the age of 4.
Vice President – Greg Stoddard
Greg is a Chemist (BS- UCLA; PhD – UC Irvine) and has 25 years of experience conducting and leading R&D efforts within a multinational chemical company. He served as a founding board member and past Secretary of the Glut1 Deficiency Foundation. He lives in Evansville, Indiana with his wife Debbie and has a daughter Madi and son Dalton. Dalton was diagnosed with Glut1 Deficiency in 2002 at age 5.
Secretary – Rob Rapaport
Rob is a retired Product Safety and Regulatory Manager of Procter & Gamble with 30 years of industrial experience. Rob earned a PhD in Environmental Engineering and Chemistry from the University of Minnesota and BS and MS degrees from Rutgers University. He currently works with Secondary school teachers as a Resource Team member of the University of Cincinnati Engineering and Enhanced Math and Science Program (CEEMS). Rob serves as Vice President of the Greater Cincinnati Engineers without Borders Chapter, and as a volunteer with the Green Learning Center. Rob lives in Cincinnati, Ohio with his wife Paula and has a daughter Sara and son JR. JR was diagnosed with Glut1 Deficiency in 2008 at the age of 17.
Treasurer – Jen Lazar
Jen Lazar holds a BS in Accounting from Miami University and has worked in public accounting, banking and as controller for two manufacturing companies before concentrating on being a full-time mom. She currently resides in Frisco, Texas with husband Sal and two boys, Alex and Sam. Sam was diagnosed with Glut1 Deficiency at Riley Children’s Hospital in Indianapolis in 2003 at age 2. Jen is a founding board member and Treasurer for the G1D Foundation.
Advocacy Director – Janet Parkhurst
Janet is an attorney specializing in IP and technology-related transactions. She spent the past six years as an Executive Vice President and General Counsel for the commercial technology division of NYSE Euronext. Prior to joining NYSE Euronext, she practiced in the IP and Technology Transactions department of Milbank, Tweed, Hadley and McCloy for 11 years. She earned her BA from Vanderbilt University and her JD from Fordham University School of Law. Janet lives in Midland Park, New Jersey with her husband, Jason and their three children, Kathleen, Aidan and Maeve. Maeve was diagnosed with Glut1 Deficiency in 2012 at the age of 8.
Education Director – Glenna Steele
Glenna holds a BS and MA Ed in Education from Eastern Kentucky University. She has spent 14 years teaching public school kindergarten and first grade in Florida and Kentucky. She has been involved as a volunteer with the Epilepsy Foundation of Kentuckiana, Kentucky Special Olympics, and served as a founding board member and past President of the Glut1 Deficiency Foundation. Glenna lives in Owingsville, Kentucky with her husband, John, and her daughters, Macie and Maggie. Macie was diagnosed with Glut1 Deficiency in 2008 at the age of 10.
Fundraising Director – April Breen
April holds a BA in Environmental Studies from The University at Buffalo. She is a Public Health Specialist conducting surveillance on Fetal Alcohol Syndrome and Muscular Dystrophy. She also serves as Co-President of her district’s Special Education Committee. She lives in Cambria, New York with her husband Gary and daughter Tessa. Tessa was diagnosed with Glut1 Deficiency in 2010 at the age of 9. Gary and April had their first “Fun Raiser” in support of the G1D Foundation within 3 months of Tessa’s diagnosis and have followed that with three more successful events. April became a member of the Fundraising Committee in 2013 and is very enthusiastic about continuing to support the Foundation’s mission of awareness, education and research.