Help and Hope for the Glut1 Deficiency Community

The Glut1 Deficiency Foundation is a non-profit family organization dedicated to educating others, raising awareness of and advocacy for Glut1 Deficiency, and supporting and funding researchers as they work for better treatments and an ultimate cure.

The Board of Directors, the Executive Director, and all committee members are parents of Glut1 Deficiency patients.  Most have full time jobs in addition to their family obligations and their work with the G1D Foundation.  All are motivated to help move the mission of the Foundation forward in hopes of helping our own children, helping each other’s children, helping find patients still waiting on a life-changing diagnosis, and helping leave the Glut1 Deficiency world a little brighter than each of us found it when we entered.

The Foundation receives support from so many families in so many ways, and this support makes the mission work possible.  We feel strongly that we can all do so much more together than any of us can do alone, so we welcome help from any who share our mission and our affection for the Glut1 Deficiency community.

If you are interested in becoming involved with one of our committees and would like to learn more, please find contact information below.

Advocacy Committee:  Erin Meisner
Education Committee:  Maria Rebbecchi
Fundraising Committee:  April Breen
Other Volunteer Opportunities: Glenna Steele


If you have an opportunity to share Glut1 Deficiency information and materials at a local educational event, please contact the Education Director.

If you are interested in holding a fundraiser for the Glut1 Deficiency Foundation, please visit our Fundraising Help page.

If you would like to learn more about the Love Some1 with Glut1 campaign, please visit the Love Some1 page.

If you are interested in finding a family-run fundraising event, please see the Upcoming Fundraisers page.

If you would like to make a donation to the Foundation, please visit the Donation page.

other ways to give