Help and Hope for the Glut1 Deficiency Community

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We held our 6th family conference and our first ever professional conference on July 6-8 in Orlando, Florida at the Walt Disney World Contemporary Resort.   It was a unique and memorable experience that left all of us full of great memories and great hope, and we are already looking forward to the next time we are together!


conference summary report

power point presentation from Ana Hernandez – Strategies That Work:  Home, School, and Beyond

power point presentation from Dr. Norma Conner – Caring for the Caregiver
caregiver resources

conference presentation summary from Beth Zupec-Kania – Ketogenic Diet Best Practices for Glut1 Deficiency


family program agenda

professional program agenda

speaker bios

scientific poster listing

scientific poster abstracts


conference thank you


conference photos

2015 Glut1 Deficiency Conference in Orlando
2015 Glut1 Deficiency Conference in Orlando