Glut1 Deficiency Foundation

Website Translator!

glenna — Fri, 17 May 2013 22:17:17 +0000

Look for the new Google Translate button on the bottom right corner of each page of our website. You can translate content to over 70 different languages!

New Spanish Brochure Translation!

glenna — Wed, 08 May 2013 14:59:52 +0000

We are pleased to share the Spanish translation of our educational brochure. Many thanks to Dr. Juan Pascual for his assistance in helping us provide this resource. We hope it will be helpful and put to good use.

Brochure Spanish Edition

Spring 2013 Newsletter and Final Conference Agenda

glenna — Wed, 01 May 2013 05:06:44 +0000

The latest edition of our Glut1 Deficiency Foundation quarterly newsletter features information on our upcoming family conferenence in Houston in July, our newly seated Medical Advisory Board, Foundation and research updates, links to several recently published articles, and much more!

There are several conference related links with the information on the first page, including the finalized conference agenda.

Love Some1 with Glut1

glenna — Tue, 26 Mar 2013 22:30:29 +0000

Our annual Love Some1 with Glut1 fundraising campaign kicked off on Valentine’s Day and and concluded on Rare Disease Day, February 28th. We had 34 participants from 7 different countries! We sincerely appreciate everyone who helped, and we look forward to sharing the final results and our plans to put the funds to use towards our mission of raising awareness, educating others, and supporting researchers.

THANK YOU!

New Medical Advisory Board

glenna — Sat, 16 Mar 2013 08:27:25 +0000

We are honored to share that our newly seated Medical Advisory Board is in now in place.

Dr. Darryl De Vivo, Columbia University

Kristin Engelstad, Columbia University

Dr. Jörg Klepper, Children’s Hospital Aschaffenburg

Dr. Eric Kossoff, Johns Hopkins Hospital

Dr. Juan Pascual, UT Southwestern

We extend a hearty welcome and a deep appreciation to each for their willingness to serve and expect great things for the Foundation from this extraordinary team.

You can learn a little more about each through page 4 of our brochure.

Happy Rare Disease Day!

glenna — Thu, 28 Feb 2013 11:41:45 +0000

Alone we are rare, together we are strong!

Click below to watch the video:

Winter 2013 Newsletter

glenna — Fri, 25 Jan 2013 03:50:08 +0000

We are pleased to share the latest edition of our quarterly newsletter. Inside, you’ll find information about our upcoming Love Some1 with Glut1 campaign, our conference in July, and some updates on research and Foundation activities.

Winter 2013 News

Registration now open!

glenna — Sat, 19 Jan 2013 15:50:13 +0000

Registration is now open for our 2013 Glut1 Deficiency Conference in Houston: July 11th and 12th

There are early registration discounts available through April 1st.

Hope to see you there!

register here

2013 Conference Updates

glenna — Wed, 09 Jan 2013 01:11:40 +0000

We have added some updated details for our conference planning for July in Houston!

Please visit this link to find out more.

We will continue to update the information as plans move along, and registration will open by February 1st.

2013 Conference – Houston

glenna — Wed, 28 Nov 2012 16:40:07 +0000

We are excited to share that our 2013 family conference will be in Houston, Texas on July 11th and 12th. The Kuypers family of Spring, Texas will be hosting.

The conference will be held at the Sheraton North, and we will provide reservation links for discounted rooms once registration is open.

We are happy and excited to present a new format for this year. We will have presentations, small group breakouts, and individual “meet the expert” sessions available. We are anxious to share more details about the agenda, the presenters, and the topics as plans become finalized.

We hope to see you there!

Registration opens soon….