new French parent association for Glut1 Deficiency

May 22nd, 2017

  We are very pleased to share news of the formation of a new formal parent association in France for Glut1 Deficiency.  You may find their website by clicking on the logo below.  We look forward to working with all the growing number of parent associations around the world as we share a common goal of providing help and hope to the Glut1 Deficiency community.

2017 Glut1 Deficiency Foundation conference updates

May 17th, 2017

  We have some updates to share on the agenda, t-shirt orders, and a group outing to the Grand Ole Opry! Please visit our conference web pages for more information!

Ketogenic Diet Features on

May 3rd, 2017

There was a nice highlight on the ketogenic diet in this month’s newsletter from the Epilepsy Foundation of America.  Some of the information shared is outlined below: There’s a wealth of information in the Keto News section of their website, which has been edited by Dr. Eric Kossoff since 2007.  Dr. Kossoff is a world renowned expert on ketogenic dietary therapies and is a member…

feature story on Glut1 Deficiency

March 12th, 2017

We are sharing a new feature story on Glut1 Deficiency from Dr. Firas Taha and the Northeast Regional Epilepsy Group.  We appreciate their interest and their desire to help spread awareness and education.  

Winter 2017 Newsletter

February 10th, 2017

Please find our most recent newsletter at the link below.  Highlights include our 2017 Love Some1 with Glut1 campaign and brand new video, Nashville conference updates, news about a new study, and lots of family news to share.  Also please be sure to check the recent publications link at the bottom of the newsletter for some exciting research progress. Winter 2017 Newsletter

New Glut1 Deficiency Parent Organization in Spain

February 5th, 2017

There is great news to share about a newly formed formal parent organization for Glut1 Deficiency in Spain.  Their mission is to share information about Glut1 Deficiency with hospitals, research centers, therapists, patients and families.  They also will work to support patients and families with Glut1 Deficiency and other diseases in the use of a ketogenic diet. They have already held their first conference in…

Love Some1 with Glut1 campaign

February 5th, 2017

Dear G1D Families: Valentine’s Day is just around the corner, and this day of showing our “love” to one-another also marks the beginning of the Glut1 Deficiency Foundation’s annual fundraiser – Love Some1 with Glut1! Do you wish for… Improved treatments and a cure for your loved one with Glut1 Deficiency? Better support for you and your loved one living with Glut1 Deficiency? More awareness and understanding in…

Glut1 Deficiency Meeting in Chile

February 5th, 2017

A summary report from a recent Glut1 Deficiency meeting in Chile.  Translations provided by Vivian Mathis. Glut1 Deficiency Meeting in Chile

Fall 2016 Newsletter

November 17th, 2016

Please visit the links below for the latest news from The Glut1 Deficiency Foundation! Fall 2016 Newsletter

Help Some1 with Glut1

October 28th, 2016

The York family of Oktaha, Oklahoma is hosting their annual Help Some1 with Glut1 on Saturday, November 12th in honor of their daughter, Abby.  All proceeds benefit the Glut1 Deficiency Foundation and its mission of education, awareness, advocacy, and supporting researchers. Find out how you can register to be a virtual walker or make a donation by visiting their website. Thank you York Family and…