Neurology Now Feature Story

October 9th, 2015

Glut1 Deficiency patient Luella Klein is featured in the latest edition of Neurology Now.  It is an encouraging and informative article that also includes some great tips and strategies for the ketogenic diet. Neurology Now

Blog Post from the Special Needs Alliance

October 6th, 2015

We were so pleased to have Emma Hemness from the Special Needs Alliance attend our conference in July and share resources with families. She has written an excellent blog post to help raise awareness about Glut1 Deficiency. Thank you Emma and the SNA! read Emma’s blog here learn more about the Special Needs Alliance here

Best Practices for the Ketogenic Diet in Glut1 Deficiency

October 4th, 2015

We have an additional presentation summary to share from our July Conference – Ketogenic Diet Best Practices for Glut1 Deficiency. We send a huge thank you to Beth Zupec-Kania of The Charlie Foundation for Ketogenic Therapies for the presentation and for taking the time to prepare the summary. She has been a tremendous help to our community for many years. Ketogenic Diet Best Practices in…

Summer 2015 newsletter

September 6th, 2015

Please see our latest newsletter for highlights from our 2015 Glut1 Deficiency Foundation Conference in July and the announcement of our next conference date and location, news about the launch of our new website, patient registry updates, and educational and family news. Summer 2015 newsletter

New Website

August 25th, 2015

We are transitioning to a new website, which we hope will result in easier and more streamlined navigation.  Please pardon any bumps you might encounter as we work to make these improvements.

2015 Conference Photos

August 25th, 2015

See photos from our 2015 conference in Orlando at the link below.  Order prints or get free downloads if you have a Shutterfly account:

Back to School Story

August 21st, 2015

Read about mom and teacher Amy Green and her daughter Addyson in the story from Patient Worthy.

Back to School on the Ketogenic Diet

August 20th, 2015

KetoCook Dawn Martenz and our friends at The Charlie Foundation have put together some helpful tips on heading back to school with the ketogenic diet.  Find lots of great information and helpful tips at the link below.

Keto Kids Club Recipe Contest

August 4th, 2015

There is a keto recipe contest being hosted by Keto Kids Club and sponsored by KetoVie. Keto Kids Club is a family group from the New Jersey/New York area.   Check out the flyer at the link below for more information on how to enter and the cash prizes being given! Deadline for submission is August 31st. ketokidsclub recipe contest        

Spring 2015 Newsletter

April 22nd, 2015

conference updates Our 2015 Glut1 Deficiency Foundation conference is quickly approaching.  We already have a record crowd registered with 63 different families represented from places near and far.  It isn’t too late to sign up to join us, and we appreciate all who are making the effort to take part in this unique opportunity to meet, share, and learn. The revised agendas to our 6th…