feature story on Glut1 Deficiency

March 12th, 2017

We are sharing a new feature story on Glut1 Deficiency from Dr. Firas Taha and the Northeast Regional Epilepsy Group.  We appreciate their interest and their desire to help spread awareness and education.  

Winter 2017 Newsletter

February 10th, 2017

Please find our most recent newsletter at the link below.  Highlights include our 2017 Love Some1 with Glut1 campaign and brand new video, Nashville conference updates, news about a new study, and lots of family news to share.  Also please be sure to check the recent publications link at the bottom of the newsletter for some exciting research progress. Winter 2017 Newsletter

New Glut1 Deficiency Parent Organization in Spain

February 5th, 2017

There is great news to share about a newly formed formal parent organization for Glut1 Deficiency in Spain.  Their mission is to share information about Glut1 Deficiency with hospitals, research centers, therapists, patients and families.  They also will work to support patients and families with Glut1 Deficiency and other diseases in the use of a ketogenic diet. They have already held their first conference in…

Love Some1 with Glut1 campaign

February 5th, 2017

Dear G1D Families: Valentine’s Day is just around the corner, and this day of showing our “love” to one-another also marks the beginning of the Glut1 Deficiency Foundation’s annual fundraiser – Love Some1 with Glut1! Do you wish for… Improved treatments and a cure for your loved one with Glut1 Deficiency? Better support for you and your loved one living with Glut1 Deficiency? More awareness and understanding in…

Glut1 Deficiency Meeting in Chile

February 5th, 2017

A summary report from a recent Glut1 Deficiency meeting in Chile.  Translations provided by Vivian Mathis. Glut1 Deficiency Meeting in Chile

Fall 2016 Newsletter

November 17th, 2016

Please visit the links below for the latest news from The Glut1 Deficiency Foundation! Fall 2016 Newsletter

Help Some1 with Glut1

October 28th, 2016

The York family of Oktaha, Oklahoma is hosting their annual Help Some1 with Glut1 on Saturday, November 12th in honor of their daughter, Abby.  All proceeds benefit the Glut1 Deficiency Foundation and its mission of education, awareness, advocacy, and supporting researchers. Find out how you can register to be a virtual walker or make a donation by visiting their website. Thank you York Family and…

1st European Conference on Glut1 Deficiency

October 23rd, 2016

The Italian Glut1 Deficiency Foundation recently hosted the first European conference on Glut1 Deficiency.  They have put together some photos and shared presentation slides of the meeting.  You can find them at their website: 2016 European Conference – Milan

Summer 2016 Newsletter

August 5th, 2016

Please find the summer 2016 edition of our newsletter at the link below.  Inside you’ll find news of our most recent research grant awards, conference updates including registration links and hotel reservation information, along with other important updates and family news. Sincere thanks to Jimena Del Azar and Vivian Mathis for helping provide a Spanish translation of the newsletter. Summer 2016 newsletter

Love Some1 with Glut1 campaign video project

July 26th, 2016

Share your heart with us! AND be a part of the Love Some1 with Glut1 2017 Campaign Dear Glut1 Deficiency Families, The Glut1 Deficiency Foundation conducts an online fundraiser Love Some1 with Glut1 Fundraising Campaign* each year from Valentine’s Day, February 14th to Rare Disease Day, February 28th.  It is the only official fundraiser conducted by the G1D Foundation, and all proceeds help the Foundation in its mission of…