Fall Newsletter

November 24th, 2015

Our fall edition of our quarterly newsletter has been posted to our website and you may find it here.  

Help Some1 with Glut1 stories

November 24th, 2015

April and Allen York collected and shared some very touching Glut1 Deficiency patient stories on their facebook page in the weeks leading up to their Help Some1 with Glut1 fundraiser in November.  We have compiled the stories and shared them here in the hopes that they will be encouraging and educational.   You may find the stories at the link below. Help Some1 with Glut1…

New Blog in Spanish

November 2nd, 2015

We are excited to share a new resource for the Spanish-speaking community – a blog by Glut1 Deficiency mom Vivian Mathis.  She hopes to help raise awareness and educate through her efforts and provide translations for some of the resources from the Foundation. Glut1Mom.com

Keto Kids Club

October 13th, 2015

A wonderful event coming up on October 22nd! Message from Glut1 Deficiency mom Renee Klein of the Keto Kids Club: ————- All: Many of you have taken the journey with our family down the long road of our oldest daughter Luella’s diagnosis and subsequent medically necessary dietary treatment. Along this journey you have witnessed the dramatic decrease in her symptoms and the overall significant improvement…

Neurology Now Feature Story

October 9th, 2015

Glut1 Deficiency patient Luella Klein is featured in the latest edition of Neurology Now.  It is an encouraging and informative article that also includes some great tips and strategies for the ketogenic diet. Neurology Now

Blog Post from the Special Needs Alliance

October 6th, 2015

We were so pleased to have Emma Hemness from the Special Needs Alliance attend our conference in July and share resources with families. She has written an excellent blog post to help raise awareness about Glut1 Deficiency. Thank you Emma and the SNA! read Emma’s blog here learn more about the Special Needs Alliance here

Best Practices for the Ketogenic Diet in Glut1 Deficiency

October 4th, 2015

We have an additional presentation summary to share from our July Conference – Ketogenic Diet Best Practices for Glut1 Deficiency. We send a huge thank you to Beth Zupec-Kania of The Charlie Foundation for Ketogenic Therapies for the presentation and for taking the time to prepare the summary. She has been a tremendous help to our community for many years. Ketogenic Diet Best Practices in…

Summer 2015 newsletter

September 6th, 2015

Please see our latest newsletter for highlights from our 2015 Glut1 Deficiency Foundation Conference in July and the announcement of our next conference date and location, news about the launch of our new website, patient registry updates, and educational and family news. Summer 2015 newsletter

New Website

August 25th, 2015

We are transitioning to a new website, which we hope will result in easier and more streamlined navigation.  Please pardon any bumps you might encounter as we work to make these improvements.

2015 Conference Photos

August 25th, 2015

See photos from our 2015 conference in Orlando at the link below.  Order prints or get free downloads if you have a Shutterfly account: