registry

www.G1DRegistry.org

This registry is being developed for several reasons.  Very little is known about the natural history of Glut1 Deficiency. By collecting information about the experiences of patients with G1D, the researchers hope to develop a better understanding of the course of this disorder. The researchers also hope that by developing a more complete understanding of G1D they will be better able to diagnose and treat it.

By filling out the online questionnaire, you will be contributing valuable information about this disease that will guide researchers as they search for therapies and improved diagnostics. Your responses will also help researchers understand what is important to you as a patient or patient caregiver. This information will help guide future research and program development.

registry

 

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