Help and Hope for the Glut1 Deficiency Community

Some listed resources contain links to third party external sites, for which the Glut1 Deficiency Foundation has no responsibility or oversight.

Glut1 Deficiency


School Related Resources

 

Professional Resources                    

 

Ketogenic Diet


Support Groups


International Glut1 Deficiency Parent Groups

 

 



Benefits for People with Disabilities

  • Kids’ Waivers  Website to find information about available Medicaid waivers state by state.
  • Health and Disability Associates Website that explains in layman’s terms community resources for people with disabilities. Also, a great asset for people who have had their Federal disability benefits initially denied.
  • Individuals with Disabilities Education Act (IDEA) IDEA guarantees that students receive help tailored to their unique needs.
  • My child’s special needs for school (IEP) A Guide to the Individualized Education Program.
  • Social Security Benefits
  • Yellow Pages for Kids with Disabilities Find resources available in your area.
  • Easter Seals is a charitable organization that assists children and adults with autism and other disabilities and special needs. It provides services, therapies, and treatments tailored to individual communities.


Epilepsy Resources


Financial Assistance

  • CHIP Children’s Health Insurance Program.
  • Social Security Benefits for children with disabilities.
  • Tax Strategies for Parents of Kids with Special Needs
  • Medicaid makes it possible for certain low-income individuals and families to get health care when they could otherwise not afford it. It is available only to certain low-income individuals and families who fit into an eligibility group that is recognized by federal and state law. Medicaid sends payments directly to health care providers.
  • Medicaid waivers are available for certain individuals who do not meet the income limits that Medicaid requires. It may cover the expenses that primary health insurance does not. The following page contains information on the different Medicaid waiver programs available in each state.
  • J Kiffin Penry Patient Travel Assistance Fund:  travel assistance from the Epilepsy Foundation for epilepsy/seizure disorder patients who must travel 50 miles or more from their home for specialized medical care.


Medication Assistance Programs


Special Education Laws

  • Wrightslaw is a website that provides reliable information and resources about legal issues concerning education law, special education law, and advocacy for children with disabilities.
  • American Bar Association for assistance locating a local attorney or finding reduced-cost legal aid
  • The ADA is a federal civil rights law that forbids discrimination based on disability in certain situations. The act defines a disability as a physical or mental impairment that substantially limits one or more major life activities.
  • My Child’s Special Needs:  federal law information from the Department of Education.
  • College Guide for Disabled Students


Other Resources