2019 Conference - Washington, DC - Glut1 Deficiency Foundation

2019 Conference – Washington, DC

We met, we shared, we learned!

We had an amazing gathering at our 8th Biennial Conference. We will be sharing conference resources here as they are made available and organized.

We are so grateful to the many who made their way to Washington, DC to join us. We look forward to welcoming you to San Diego for our next conference in June of 2021.

All speakers have been invited to provide presentation slides or resources to share.

Conference Summary Report

Conference Summary Report
Chantal Sanchez and Kris Engelstad

Presentation Slides

Opening Welcome
Glut1 Deficiency Foundation

Update on METAglut1 Blood Test Development
Vincent Petit

Influences on Ketosis
Dominic D'Agostino

Useful Tools and Concepts in the Keto Kitchen
Maria Rebbecchi

Feeding Tube Tips
Kelly Jones

Social Security and Disability
Stacy Cloyd

Fostering Independence - Parent Presentation
Dana Pottschmidt

Independence - Patient Presentation
Dana Pottschmidt

Anything's Possible Patient Spotlight
Joanna Snyder

Consensus and Global Updates
Jörg Klepper

Treatments Old and New
Jörg Klepper

Handouts

Social Security Waivers
Glut1 Deficiency Foundation

Sibling Support
Holly Senn and Lauren Furtner

STABLE Account Presentation Outline
STABLE Account Flyer
Nicholas Hancart

Special Needs Trusts
Special Needs Alliance - Kelly Thompson

Program Book with Agenda and Speaker Bios
Patti Slone

Photos

Conference Photos
Rob Rapaport and Joanna Snyder

Conference photos are available on Shutterfly for conference attendees and are password protected. The password has been emailed to attendees, but please contact Glenna if you need it sent again.