Glut1 Deficiency Foundation
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2019 Conference – Washington, DC

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We met, we shared, we learned!

We had an amazing gathering at our 8th Biennial Conference.  We will be sharing conference resources here as they are made available and organized.

We are so grateful to the many who made their way to Washington, DC to join us. We look forward to welcoming you to San Diego for our next conference in June of 2021. 

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All speakers have been invited to provide presentation slides or resources  to share. 

Conference Summary Report

Conference Summary Report
Chantal Sanchez and Kris Engelstad

Presentation Slides

Opening Welcome
​Glut1 Deficiency Foundation
Update on METAglut1 Blood Test Development
​
Vincent Petit
Influences on Ketosis
​
Dominic D'Agostino

Useful Tools and Concepts in the Keto Kitchen
​
Maria Rebbecchi
Feeding Tube Tips
​
Kelly Jones

Social Security and Disability
​
Stacy Cloyd

Fostering Independence - Parent Presentation
​
Dana Pottschmidt

Independence - Patient Presentation
​
Dana Pottschmidt

Anything's Possible Patient Spotlight
​Joanna Snyder
Consensus and Global Updates
Jörg Klepper
Treatments Old and New
Jörg Klepper

Handouts

Social Security Waivers
​
Glut1 Deficiency Foundation

Sibling Support
​
Holly Senn and Lauren Furtner

STABLE Account Presentation Outline
STABLE Account Flyer 
​Nicholas Hancart
Special Needs Trusts
​
Special Needs Alliance - Kelly Thompson

Program Book with Agenda and Speaker Bios
Patti Slone

Photos

Conference Photos
​
Rob Rapaport and Joanna Snyder

Conference photos are available on Shutterfly for conference attendees and are password protected.  The password has been emailed to attendees, but please contact Glenna if you need it sent again.

Poster Session

Poster List
Poster Abstracts

Media

Patient Worthy Conference Report
​
Rebekah Horsting


Join OUr Networks

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Glut1 Deficiency Foundation
PO Box 737 
Owingsville, KY 40360    
​info@G1DFoundation.org
​
Contact Us

​​Resources and information on this website are not intended as medical care or advice.
​​Please consult with your healthcare provider.
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Copyright © 2021 Glut1 Deficiency Foundation
  • Home
  • About Glut1 Deficiency
    • What is Glut1 Deficiency?
    • Key Terms in Glut1 Deficiency
    • About the Ketogenic Diet
    • Newly Diagnosed
    • Research >
      • Research News >
        • Research Grant Program >
          • Research Grant Award Recipients
      • Recent Publications
      • Patient Registry
    • Resources >
      • Cognition and Learning
      • Videos
      • Resource List
      • Family Recommended Specialists
      • Patient Stories >
        • Stories >
          • Emily
          • Bobby
          • Lilly
          • Allison
          • Katie
          • Tessa
          • Justin
          • Whitney
          • Ryan
          • Erik
          • Pattygrace
          • Chris
          • Sam
          • Collette
          • Phil
          • Joshua
          • DeAndre
          • Matt
          • Jayden
          • Brittany
          • Macie
          • Braden
          • Dalton
          • Jordan
          • Joelle
          • Sabrina
          • Thomas
          • Haley
          • Reed
          • Ben
          • Parys
          • Ronnie-Louise
          • Colin
          • Nathan
          • Lee
          • Dominic
          • Raina
          • Dylan
          • Brayden
          • Elli
          • Jacob
          • Rian
          • Hailey
          • Olivia
          • Addie
          • Drake
        • Share Your Story
      • Materiales en Español
    • Brochures
  • About G1DF
    • About the Foundation
    • Leadership Team
    • Medical Advisory Board
    • Scientific Advisory Board
    • Educational Events and Exhibits
    • Ways to Help
  • News
    • COVID-19
    • CZI Rare As One
    • Foundation Newsletters >
      • Fall 2020
      • Summer 2020
      • Spring 2020
      • Winter 2020
      • Fall 2019
      • Summer 2019
      • Spring 2019
      • Winter 2019
      • Fall 2018
      • Summer 2018
      • Spring 2018
      • Winter 2018
      • Fall 2017
      • Summer 2017
      • Spring 2017
      • Winter 2017
  • Conferences and Events
    • Conferences
    • 2021 Conference - San Diego
    • Glut1 Gatherings on Zoom
  • Get Involved
    • Family and Professional Networks
    • Volunteer Network
    • UTSW Surveys
    • Sign Up for Our Mailing List
    • Ways to Give
    • Shop to Support
    • Donate
    • Love Some1 with Glut1 >
      • 2021 Love Some1 video
      • 2021 Love Some1 with Glut1
    • Million Dollar Bike Ride
    • Fundraising >
      • Fundraising Help
      • Host a Fundraiser
  • Donate