2019 Conference – Washington, DC
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We met, we shared, we learned!
We had an amazing gathering at our 8th Biennial Conference. We will be sharing conference resources here as they are made available and organized. We are so grateful to the many who made their way to Washington, DC to join us. We look forward to welcoming you to San Diego for our next conference in June of 2021. |
All speakers have been invited to provide presentation slides or resources to share. Please continue to check back as more resources are made available, including the Conference Summary Report.
Presentation SlidesUpdate on METAglut1 Blood Test Development
Vincent Petit Influences on Ketosis
Dominic D'Agostino Useful Tools and Concepts in the Keto Kitchen
Maria Rebbecchi Feeding Tube Tips
Kelly Jones Social Security and Disability
Stacy Cloyd Fostering Independence - Parent Presentation
Dana Pottschmidt Independence - Patient Presentation
Dana Pottschmidt Consensus and Global Updates
Jörg Klepper Treatments Old and New
Jörg Klepper |
HandoutsSocial Security Waivers
Glut1 Deficiency Foundation Sibling Support
Holly Senn and Lauren Furtner Special Needs Trusts
Special Needs Alliance - Kelly Thompson Program Book with Agenda and Speaker Bios
Patti Slone PhotosConference Photos
Rob Rapaport and Joanna Snyder Conference photos are available on Shutterfly for conference attendees and are password protected. The password has been emailed to attendees, but please contact Glenna if you need it sent again.
Poster Session |
Media
Patient Worthy Conference Report
Rebekah Horsting
Rebekah Horsting
