2021 Glut1 Deficiency Foundation Conference - San Diego
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Our next gathering is planned for June 2021 at the beautiful Kona Kai Resort on Shelter Island in San Diego, California. SCIENTIFIC MEETING: June 21-23 FAMILY MEETING: June 23-25 with a special social activity on Saturday, June 26th We hope to see you there! |
This will be our 9th family gathering and our very first dedicated scientific meeting. We are extremely excited about both and the important role these convenings play in our mission and in our new efforts to establish a collaborative research network.
We are hopeful that many of the current concerns around COVID-19 will be behind us by the time the conference takes place. We will continue to monitor things very closely and make decisions with the health and safety of our community as top priority.
To allow more time to continue watching, waiting, and decision-making, we will postpone the opening of registration until early 2021. We will continue planning sessions and activities, and please check back for updates on progress and more details to be shared here.
We are hopeful that many of the current concerns around COVID-19 will be behind us by the time the conference takes place. We will continue to monitor things very closely and make decisions with the health and safety of our community as top priority.
To allow more time to continue watching, waiting, and decision-making, we will postpone the opening of registration until early 2021. We will continue planning sessions and activities, and please check back for updates on progress and more details to be shared here.
Preliminary Conference Overview
We are sharing these preliminary schedules to give attendees an idea of what to expect at our Scientific and Family meeting. These schedules are in rough draft form and subject to change, especially if there are still restrictions and regulations around COVID-19 that may impact the types of activities we are able to plan.
SCIENTIFIC MEETING
Monday, June 21
Opening Session
Glut1 Deficiency Overview, Research Updates
Glut1 Transporters
Glut1 in Other Diseases and Tissues
Glucose Metabolism
Evening:
Poster Session
Reception
Tuesday, June 22
Blood Brain Barrier
Ketogenic Diets
Other Topics
Special Interest Roundtables, Reports
Closing Session
Evening:
Social Event
Wednesday, June 23
Morning:
Strategic Planning for the Collaborative Research Network
Opening Session
Glut1 Deficiency Overview, Research Updates
Glut1 Transporters
Glut1 in Other Diseases and Tissues
Glucose Metabolism
Evening:
Poster Session
Reception
Tuesday, June 22
Blood Brain Barrier
Ketogenic Diets
Other Topics
Special Interest Roundtables, Reports
Closing Session
Evening:
Social Event
Wednesday, June 23
Morning:
Strategic Planning for the Collaborative Research Network
FAMILY MEETING
Wednesday, June 23rd
Evening: Welcoming Social
Thursday, June 24
Morning: Breakout Focus Sessions
Newly Diagnosed, Adults, Parent/Patient Panels, Other Topics
Cooking Demonstrations
Exhibits
Afternoon: Opening Sessions
Glut1 Deficiency Overview
Updates on Symptoms, Diagnosis, Consensus Care, Treatments
Evening: Pool Party Social
Evening: Welcoming Social
Thursday, June 24
Morning: Breakout Focus Sessions
Newly Diagnosed, Adults, Parent/Patient Panels, Other Topics
Cooking Demonstrations
Exhibits
Afternoon: Opening Sessions
Glut1 Deficiency Overview
Updates on Symptoms, Diagnosis, Consensus Care, Treatments
Evening: Pool Party Social
Friday, June 25
Morning: Patient-Centered Outcomes Research - Patient Engagement, Patient Voice, Meaningful Outcomes
Research Updates, Scientific Meeting Report, Research Panel
Afternoon: Group Photo
Focus Breakout Sessions - topics to be determined via surveys
Next Steps
Closing
Evening: Social Event
Saturday, June 26
Group Outing
Morning: Patient-Centered Outcomes Research - Patient Engagement, Patient Voice, Meaningful Outcomes
Research Updates, Scientific Meeting Report, Research Panel
Afternoon: Group Photo
Focus Breakout Sessions - topics to be determined via surveys
Next Steps
Closing
Evening: Social Event
Saturday, June 26
Group Outing
Kona Kai Resort and Spa
The venue will be the beautiful Kona Kai Resort and Spa on Shelter Island in San Diego. We have secured special discount room rates starting at $239 daily for conference attendees along with a discounted resort fee of $15 per room per day and discounted parking of $15 per car per day.
Room reservations are planned to open in early 2021 to allow time to continue monitoring the COVID-19 situation.
Room reservations are planned to open in early 2021 to allow time to continue monitoring the COVID-19 situation.
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