Glut1 Deficiency Foundation
  • Home
  • About Glut1 Deficiency
    • What is Glut1 Deficiency?
    • Key Terms in Glut1 Deficiency
    • About the Ketogenic Diet
    • Newly Diagnosed
    • Research >
      • Research News
      • Research Grant Program >
        • Research Grant Award Recipients
      • Recent Publications
      • Patient Registry
    • Resources >
      • Resource List
      • Videos
      • Cognition and Learning
      • Family Recommended Specialists
      • COVID-19
      • Patient Stories >
        • Stories
        • Share Your Story
      • Materiales en Español
    • Brochures
  • About G1DF
    • About the Foundation
    • Leadership Team
    • Medical Advisory Board
    • Scientific Advisory Board
    • Educational Events and Exhibits
    • Ways to Help
  • News
    • CZI Rare As One
    • Foundation Newsletters >
      • Spring 2021
      • Winter 2021
      • Fall 2020
      • Summer 2020
      • Spring 2020
      • Winter 2020
      • Fall 2019
      • Summer 2019
      • Spring 2019
      • Winter 2019
      • Fall 2018
      • Summer 2018
      • Spring 2018
      • Winter 2018
      • Fall 2017
      • Summer 2017
      • Spring 2017
      • Winter 2017
  • Conferences and Events
    • Conferences
    • 2021 Scientific and Family Conferences
    • Glut1 Gatherings on Zoom
  • Get Involved
    • Family and Professional Networks
    • Volunteer Network
    • UTSW Surveys
    • Sign Up for Our Mailing List
    • Ways to Give
    • Shop to Support
    • Donate
    • Love Some1 with Glut1 >
      • 2021 Love Some1 with Glut1
    • Million Dollar Bike Ride
    • Fundraising >
      • Fundraising Help
      • Host a Fundraiser
  • Donate

Picture

Agenda and Schedule

Picture

​Conference sessions will be held on Thursday and Friday, July 11-12

Special social activities are planned for
​Wednesday through Saturday, July 10-13
preliminary agenda link
(formatting does not display properly on mobile devices)

Confirmed Speakers:
Stéphane Auvin, MD, PhD, FAES
Mackenzie Cervenka, MD
​Stacy Cloyd
Darryl De Vivo, MD
Dominic D'Agostino, PhD
Kris Engelstad, MS, CGC
Jennifer Fitzhugh, MEd
Emily Freeborn
Lauren Furtner
Adam Hartman, MD
Veronica Hinton, PhD
Leslie Holleman
Smitha Jagadish, PhD
Kelly Jones
Jörg Klepper, Prof. Dr. Med
Eric Kossoff, MD
​Wes Lowman, RDN
Dawn Martenz
​Erin Meisner
Umrao Monani, PhD
Eric Ochmanek
Juan Pascual, MD, PhD
​Dana Pottschmidt, MSW, LSW, RBC
Toni Pearson, MD
​Karthik Rajasekaran, PhD
Maria Rebbecchi, RN
​Rachel Salazar
Holly Senn
​Kelly Thompson, Esq.
Michèl Willemsen, MD
Planned Topics:
research updates
past, present, future 
patient 
registry
consensus paper
genetic testing
prevalence
natural history
movement disorders
seizures
cognitive considerations
other common symptoms
adult experiences
treatments
anticonvulsant use
​gene therapy
​ketogenic diets
​CBD oil
​ketone esters
​
best practices in ketogenic care
fine tuning
NIH research programs
simple keto strategies and meals
kitchen tips
feeding tubes
independence
influences on ketosis
​learning and therapy strategies

school and vocational planning
ketogenic diet for adults
adult patient focus sessions
newly diagnosed focus sessions

planning for the future
ABLE Act savings program
​special needs trusts
​caregiver and sibling support

Q&A sessions

 special focus sessions planned for patients, siblings, parents, and professionals
scientific poster session (more information here)
exhibits with keto cooking and sampling

Social Activities Planned:
special patient red carpet event - Wednesday evening
children's entertainment and activities - Thursday and Friday
special guests Koo Koo Kanga Roo - Thursday evening
twilight monument tour - Friday evening
group tours of the US Capitol - Saturday morning
​
Picture
Confirmed Sponsors and Exhibitors:
Medica Nutrition
STABLE ACT - Achieving a Better Life Experience Act
​The Charlie Foundation for Ketogenic Therapies
Nutricia/KetoCal
Cambrooke/KetoVie
​Vitaflo
​Metafora

​Conference Support: 
Greenwich Biosciences Educational Grant
​PCORI Eugene Washington Engagement Award

Friends of the Foundation Support:
Rebbecchi Family
The Charlie Foundation for Ketogenic Therapies

  • an unsupervised children's activity room will be provided with some special structured activities and visitors planned
  • a hospitality room will be available with scales and some basic ketogenic supplies 
  • meals included will be planned with ketogenic selections in mind - breakfast and lunch provided on Thursday and Friday
  • all hotel rooms have a small refrigerator and there will be access to a microwave


Join OUr Networks

Picture
Picture
Picture

Picture
Picture

Glut1 Deficiency Foundation
PO Box 737 
Owingsville, KY 40360    
​info@G1DFoundation.org
​
Contact Us

​​Resources and information on this website are not intended as medical care or advice.
​​Please consult with your healthcare provider.
Picture
Mailing List
​
Shop to Support
Privacy Policy
Terms of Use

Cookie Statement
                    

Picture
Picture
Picture
Picture
Picture
Picture

Copyright © 2021 Glut1 Deficiency Foundation
  • Home
  • About Glut1 Deficiency
    • What is Glut1 Deficiency?
    • Key Terms in Glut1 Deficiency
    • About the Ketogenic Diet
    • Newly Diagnosed
    • Research >
      • Research News
      • Research Grant Program >
        • Research Grant Award Recipients
      • Recent Publications
      • Patient Registry
    • Resources >
      • Resource List
      • Videos
      • Cognition and Learning
      • Family Recommended Specialists
      • COVID-19
      • Patient Stories >
        • Stories
        • Share Your Story
      • Materiales en Español
    • Brochures
  • About G1DF
    • About the Foundation
    • Leadership Team
    • Medical Advisory Board
    • Scientific Advisory Board
    • Educational Events and Exhibits
    • Ways to Help
  • News
    • CZI Rare As One
    • Foundation Newsletters >
      • Spring 2021
      • Winter 2021
      • Fall 2020
      • Summer 2020
      • Spring 2020
      • Winter 2020
      • Fall 2019
      • Summer 2019
      • Spring 2019
      • Winter 2019
      • Fall 2018
      • Summer 2018
      • Spring 2018
      • Winter 2018
      • Fall 2017
      • Summer 2017
      • Spring 2017
      • Winter 2017
  • Conferences and Events
    • Conferences
    • 2021 Scientific and Family Conferences
    • Glut1 Gatherings on Zoom
  • Get Involved
    • Family and Professional Networks
    • Volunteer Network
    • UTSW Surveys
    • Sign Up for Our Mailing List
    • Ways to Give
    • Shop to Support
    • Donate
    • Love Some1 with Glut1 >
      • 2021 Love Some1 with Glut1
    • Million Dollar Bike Ride
    • Fundraising >
      • Fundraising Help
      • Host a Fundraiser
  • Donate