Agenda and Schedule


​Conference sessions will be held on Thursday and Friday, July 11-12

Special social activities are planned for
​Wednesday through Saturday, July 10-13
Confirmed Speakers:
Stéphane Auvin, MD, PhD, FAES
Mackenzie Cervenka, MD
Darryl De Vivo, MD
Dominic D'Agostino, PhD
Kris Engelstad, MS, CGC
Jennifer Fitzhugh, MEd
Adam Hartman, MD
Veronica Hinton, PhD
Leslie Holleman
Kelly Jones
Jörg Klepper, Prof. Dr. Med
Eric Kossoff, MD
​Wes Lowman, RDN
Dawn Martenz
​Erin Meisner
Umrao Monani, PhD
Eric Ochmanek
Juan Pascual, MD, PhD
Toni Pearson, MD
Maria Rebbecchi, RN
Michél Willemsen, MD
Sameer Zuberi, MD
Planned Topics:
research updates
past, present, future 
patient registry
consensus paper
genetic testing
prevalence
natural history
movement disorders
seizures
cognitive considerations
other common symptoms
adult experiences
treatments
​gene therapy
​ketogenic diets
​
best practices in ketogenic care
fine tuning
NIH research programs
simple keto strategies and meals
kitchen tips
feeding tubes
independence
influences on ketosis
​learning and therapy strategies
school and vocational planning
ketogenic diet for adults
adult patient focus sessions
newly diagnosed focus sessions
planning for the future
ABLE Act savings programs
ask the expert sessions
 special focus sessions planned for patients, siblings, parents, and professionals
scientific poster session
exhibits with keto cooking and sampling
Social Activities Planned:
special patient red carpet event - Wednesday evening
children's entertainment and activities - Thursday and Friday
special guests Koo Koo Kanga Roo - Thursday evening
twilight monument tour - Friday evening
group tours of the US Capitol - Saturday morning
​
Confirmed Sponsors and Exhibitors:
Medica Nutrition
Keto Hope Foundation
Canine Partners for Life
STABLE ACT - Achieving a Better Life Experience Act
​The Charlie Foundation for Ketogenic Therapies

​Conference Support: 
Greenwich Biosciences Educational Grant
​PCORI Eugene Washington Engagement Award

Friends of the Foundation Support:
Rebbecchi Family
  • an unsupervised children's activity room will be provided with some special structured activities and visitors planned
  • a hospitality room will be available with scales and some basic ketogenic supplies 
  • meals included will be planned with ketogenic selections in mind - breakfast and lunch provided on Thursday and Friday
  • all hotel rooms have a small refrigerator and there will be access to a microwave