|
Confirmed Speakers:
Stéphane Auvin, MD, PhD, FAES Mackenzie Cervenka, MD Stacy Cloyd Darryl De Vivo, MD Dominic D'Agostino, PhD Kris Engelstad, MS, CGC Jennifer Fitzhugh, MEd Emily Freeborn Lauren Furtner Adam Hartman, MD Veronica Hinton, PhD Leslie Holleman Smitha Jagadish, PhD Kelly Jones Jörg Klepper, Prof. Dr. Med Eric Kossoff, MD Wes Lowman, RDN Dawn Martenz Erin Meisner Umrao Monani, PhD Eric Ochmanek Juan Pascual, MD, PhD Toni Pearson, MD Karthik Rajasekaran, PhD Maria Rebbecchi, RN Rachel Salazar Holly Senn Kelly Thompson, Esq. Michèl Willemsen, MD |
Planned Topics:
research updates past, present, future patient registry consensus paper genetic testing prevalence natural history movement disorders seizures cognitive considerations other common symptoms adult experiences treatments anticonvulsant use gene therapy ketogenic diets CBD oil ketone esters |
best practices in ketogenic care fine tuning NIH research programs simple keto strategies and meals kitchen tips feeding tubes independence influences on ketosis learning and therapy strategies school and vocational planning ketogenic diet for adults adult patient focus sessions newly diagnosed focus sessions planning for the future ABLE Act savings program special needs trusts caregiver and sibling support Q&A sessions |
special focus sessions planned for patients, siblings, parents, and professionals
scientific poster session (more information here)
exhibits with keto cooking and sampling
scientific poster session (more information here)
exhibits with keto cooking and sampling
|
Social Activities Planned:
special patient red carpet event - Wednesday evening children's entertainment and activities - Thursday and Friday special guests Koo Koo Kanga Roo - Thursday evening twilight monument tour - Friday evening group tours of the US Capitol - Saturday morning 
|
Confirmed Sponsors and Exhibitors:
Medica Nutrition Canine Partners for Life STABLE ACT - Achieving a Better Life Experience Act The Charlie Foundation for Ketogenic Therapies Nutricia/KetoCal Cambrooke/KetoVie Vitaflo Conference Support: Greenwich Biosciences Educational Grant PCORI Eugene Washington Engagement Award Friends of the Foundation Support: Rebbecchi Family The Charlie Foundation for Ketogenic Therapies |
- an unsupervised children's activity room will be provided with some special structured activities and visitors planned
- a hospitality room will be available with scales and some basic ketogenic supplies
- meals included will be planned with ketogenic selections in mind - breakfast and lunch provided on Thursday and Friday
- all hotel rooms have a small refrigerator and there will be access to a microwave
