Glut1 Deficiency Foundation
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Braden


Plainville, Connecticut

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 Braden was diagnosed with Glut1 by the age 12 months.  He Started on the Ketogenic diet right away and been on it for past 12 years.  Braden started showing signs of seizures with eye twitching movements, trouble eating formula along with developmental delays by 3 months old.

Braden started therapies at school and privately such as OT, PT, and Speech.  The therapy has made a huge impact to the improvement and ability of things Braden can and can not do. He finally started walking at age 3.  Riding a bike was a challenge but with a lot of determination and hard work he could finally ride a two wheel bike  .Having a younger sister only 17 months younger helps him try to push to keep up with her.

Braden was diagnosed at age of 9 with PED (Paroxysmal exercise-induced dyskinesias.) He has days that his leg muscles tighten up and make it difficult to walk, These episodes can last minutes or longer depending on his day.  This doesn't happen often and comes and gos. 

Braden is now a happy 13yrs old and a 7th grader at middle school.  He receives 1-1 para help and spends most of his academic periods in the resource room.  He still struggles with basic functions of reading, writing and math, He loves science, though.He loves interacting with his peers.  He is always smiling and willing to make new friends. Braden enjoys swimming and participating in our towns Unified Basketball team for the past two years.  He also is a Jr coach at his old elementary school helping out their Unified Sports programs.
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Braden still struggles with speech, fine motor and developmental delays but he works hard and continues to improve everyday. We are so proud of him.
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Glut1 Deficiency Foundation
PO Box 737 
Owingsville, KY 40360    
​info@G1DFoundation.org
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Copyright © 2021 Glut1 Deficiency Foundation
  • Home
  • About Glut1 Deficiency
    • What is Glut1 Deficiency?
    • Key Terms in Glut1 Deficiency
    • About the Ketogenic Diet
    • Newly Diagnosed
    • Research >
      • Research News >
        • Research Grant Program >
          • Research Grant Award Recipients
      • Recent Publications
      • Patient Registry
    • Resources >
      • Cognition and Learning
      • Videos
      • Resource List
      • Family Recommended Specialists
      • COVID-19
      • Patient Stories >
        • Stories
        • Share Your Story
      • Materiales en Español
    • Brochures
  • About G1DF
    • About the Foundation
    • Leadership Team
    • Medical Advisory Board
    • Scientific Advisory Board
    • Educational Events and Exhibits
    • Ways to Help
  • News
    • CZI Rare As One
    • Foundation Newsletters >
      • Winter 2021
      • Fall 2020
      • Summer 2020
      • Spring 2020
      • Winter 2020
      • Fall 2019
      • Summer 2019
      • Spring 2019
      • Winter 2019
      • Fall 2018
      • Summer 2018
      • Spring 2018
      • Winter 2018
      • Fall 2017
      • Summer 2017
      • Spring 2017
      • Winter 2017
  • Conferences and Events
    • Conferences
    • 2021 Scientific and Family Conferences
    • Glut1 Gatherings on Zoom
  • Get Involved
    • Family and Professional Networks
    • Volunteer Network
    • UTSW Surveys
    • Sign Up for Our Mailing List
    • Ways to Give
    • Shop to Support
    • Donate
    • Love Some1 with Glut1 >
      • 2021 Love Some1 with Glut1
    • Million Dollar Bike Ride
    • Fundraising >
      • Fundraising Help
      • Host a Fundraiser
  • Donate