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Ciitizen Informational Session

  • April 17 @ 2:00 pm - 3:00 pm

Join us on Monday, April 17th at 2:00 PM Eastern for a presentation from Ciitizen about the Rare Patient Network and how the Ciitizen platform puts the power of patient data to work. In addition to the important research aspects, there are many benefits back to the patient and family, too, in putting your health history at your fingertips and providing new and helpful insights.

Fellow rare disease mom Virginie McNamar will lead the session and share some insights into how Ciitizen has helped her family and the SYNGAP1 community. She works for Ciitizen and will be able to answer questions and help walk us through the quick and easy process.