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Join the Glut1 Deficiency Foundation Family Network
The Glut1 Deficiency Foundation values your
privacy
and will not share your information outside the G1DF. By submitting this form, you agree to voluntarily provide the information below to the G1DF and become a member of our Family Network. You may request that you and your personal information be removed from the Family Network by
emailing the G1DF
.
Contact Information
*
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Name
*
First
Last
Address
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City
State
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*
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*
Glut1 Deficiency Connection
What is your connection to Glut1 Deficiency?
*
I am a patient.
I am a parent or caregiver of a patient.
Other
if other, please specify:
*
The G1DF Family Network has been created as a means to connect and better serve patients and primary caregivers. If you are a healthcare provider or researcher, please join the
G1DF Professional Network
.
Patient Information
Patient Name:
*
First
Last
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Year of Birth:
*
Age at Diagnosis:
*
Any Additional Information/Notes:
*
Medical Team
Name of Treating Physician:
*
Name of Dietitian (if applicable):
*
Location of Medical Team (city, state, country):
*
Institution or Hospital Affiliation:
*
The Glut1 Deficiency Foundation maintains a Family Recommended Specialist List to serve as a directory of healthcare providers who have experience in treating Glut1 Deficiency patients and who provide quality care.
Would you like to add your team to the directory?
*
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Newsletter
The Glut1 Deficiency Foundation publishes a quarterly newsletter to keep the community updated about the latest news in research, G1DF activities and projects, family happenings, and other related information.
Would you like to receive the newsletter by email?
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I already receive the newsletter.
Welcome Packets for Newly Diagnosed
The G1DF provides a welcome packet of resources to newly diagnosed families (brochures, bracelet, sticker, etc.). If you'd like to receive one, please indicate that below and ensure your correct mailing address is provided above.
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Submit
Home
About Glut1 Deficiency
What is Glut1 Deficiency?
Key Terms in Glut1 Deficiency
About the Ketogenic Diet
Newly Diagnosed
Research
>
Research News
>
Research Grant Program
>
Research Grant Award Recipients
Recent Publications
Patient Registry
Resources
>
Cognition and Learning
Videos
Resource List
Family Recommended Specialists
Patient Stories
>
Stories
>
Emily
Bobby
Lilly
Allison
Katie
Tessa
Justin
Whitney
Ryan
Erik
Pattygrace
Chris
Sam
Collette
Phil
Joshua
DeAndre
Matt
Jayden
Brittany
Macie
Braden
Dalton
Jordan
Joelle
Sabrina
Thomas
Haley
Reed
Ben
Parys
Ronnie-Louise
Colin
Nathan
Lee
Dominic
Raina
Dylan
Brayden
Elli
Jacob
Rian
Hailey
Olivia
Addie
Drake
Share Your Story
Materiales en Español
Brochures
About G1DF
About the Foundation
Leadership Team
Medical Advisory Board
Scientific Advisory Board
Educational Events and Exhibits
Ways to Help
News
COVID-19
CZI Rare As One
Foundation Newsletters
>
Fall 2020
Summer 2020
Spring 2020
Winter 2020
Fall 2019
Summer 2019
Spring 2019
Winter 2019
Fall 2018
Summer 2018
Spring 2018
Winter 2018
Fall 2017
Summer 2017
Spring 2017
Winter 2017
Conferences and Events
Conferences
2021 Conference - San Diego
Glut1 Gatherings on Zoom
Get Involved
Family and Professional Networks
Volunteer Network
UTSW Surveys
Sign Up for Our Mailing List
Ways to Give
Shop to Support
Donate
Love Some1 with Glut1
>
2021 Love Some1 video
2021 Love Some1 with Glut1
Million Dollar Bike Ride
Fundraising
>
Fundraising Help
Host a Fundraiser
Donate