Join the Glut1 Deficiency Foundation Family Network

    The Glut1 Deficiency Foundation values your privacy and will not share your information outside the G1DF. By submitting this form, you agree to voluntarily provide the information below to the G1DF and become a member of our Family Network.  You may request that you and your personal information be removed from the Family Network by emailing the G1DF.

    Contact Information

    Glut1 Deficiency Connection

    The G1DF Family Network has been created as a means to connect and better serve patients and primary caregivers. If you are a healthcare provider or researcher, please join the G1DF Professional Network. 

    Patient Information

    Medical Team
    The Glut1 Deficiency Foundation maintains a Family Recommended Specialist List to serve as a directory of healthcare providers who have experience in treating Glut1 Deficiency patients and who provide quality care.

    Newsletter and Mailing List

    The Glut1 Deficiency Foundation shares occasional email announcements and publishes a quarterly newsletter to keep the community updated about the latest news in research, G1DF activities and projects, family happenings, and other related information.  We never share this list or your personal information.

    Welcome Packets for Newly Diagnosed

    The G1DF provides a welcome packet of resources to newly diagnosed families (brochures, bracelet, sticker, etc.).  If you'd like to receive one, please indicate that below and ensure your correct mailing address is provided above.