Fundraising Help
Is the Foundation a non-profit?
Yes. The Glut1 Deficiency Foundation is a non-profit organization recognized by the IRS. All donations are used toward the Foundation’s mission of increased awareness, improved education, advocacy for patients and families, and support and funding for researchers.
Are donations tax deductible?
The Glut1 Deficiency Foundation is incorporated in the State of Indiana and is recognized by the IRS as a charitable organization under tax code 501 c3. Tax ID number is: 45-2190535. Under most circumstances, donations to the Glut1 Deficiency Foundation are tax-deductible providing no goods or services were exchanged for the donation.
How does the Foundation use the donations it receives?
The Glut1 Deficiency Foundation is run by an eight-member board of parent volunteers and an executive director (also a G1D parent). The board makes decisions based on the mission of the Foundation which is to raise awareness, educate, advocate, and support researchers as they work for better understanding and a cure. Mission programs include the biennial Glut1 Deficiency Conference, educational outreach programs, exhibiting at medical conferences, advocacy activities on behalf of patients and families, and funding research projects. The mission is funded entirely by donations. Foundation financial statements can be found on our website. All funds are used to better the lives of those affected with Glut1 Deficiency and their families.
How do I inform potential donors about Glut1 Deficiency and/or the Foundation?
There are many ways to inform potential donors about the Glut1 Deficiency Foundation.
What is the Foundation’s website?
The official Glut1 Deficiency Foundation website is: www.G1DFoundation.org
What are the ways that donations can be sent to the foundation?
Donations are accepted online or by US Postal Mail:
Just ask. Most people are generous and are willing to give to charitable organizations. Research finds that donors are motivated because it makes them feel good and they like to be recognized. The most difficult hurdle for most fundraisers is the “asking”; but what our experience tells us is that once people get over that hurdle, they find a great satisfaction and love for their fellow man when they see the generosity that most often follows. So ask, and say “Thank You”. Some will say no, but that’s okay – and a great many will surprise you with their gifts.
I am interested in hosting a fundraising event. Where can I learn more?
The Glut1 Deficiency Foundation is grateful for these individual events to raise awareness and funds to support the mission of the G1DF. Please find more information hosting about third party fundraisers here.
Can you provide more information about the official Love Some1 with Glut1 Campaign?
The Love Some1 with Glut1 campaign is the annual fundraising campaign for the Glut1 Deficiency Foundation. The campaign is run in conjunction with the world recognized “Rare Disease Day” which is the last day of February. The Love Some1 campaign runs from February 14, Valentine’s Day (a perfect day for love) through Rare Disease Day, February 28. The Foundation prepares a web-page template that it shares with the Glut1 community. Individual families then can customize their web-page by adding a photo or video, and personal story about their family or fundraiser. This web page link can then be sent to friends, families, co-workers, church family, sports teammates, etc. to encourage donations. The template will capture all of your personal fundraising results, allow you to send personal thank you notes and monitor your progress. Watch for information in early January for each year’s Love Some1 with Glut1 campaign.
How do I thank donors?
One of the most important things you can do is send a thank you (and the more personalized the better). Donors are much more likely to become repeat donors if you show your appreciation and reassure them that giving to the G1D Foundation was a good decision.
Consider the following when you write your thank you note for someone who has supported your fundraising efforts:
I’m not able to have a fundraiser, but I would still like to help. Any suggestions?
Yes. The Glut1 Deficiency Foundation is a non-profit organization recognized by the IRS. All donations are used toward the Foundation’s mission of increased awareness, improved education, advocacy for patients and families, and support and funding for researchers.
Are donations tax deductible?
The Glut1 Deficiency Foundation is incorporated in the State of Indiana and is recognized by the IRS as a charitable organization under tax code 501 c3. Tax ID number is: 45-2190535. Under most circumstances, donations to the Glut1 Deficiency Foundation are tax-deductible providing no goods or services were exchanged for the donation.
How does the Foundation use the donations it receives?
The Glut1 Deficiency Foundation is run by an eight-member board of parent volunteers and an executive director (also a G1D parent). The board makes decisions based on the mission of the Foundation which is to raise awareness, educate, advocate, and support researchers as they work for better understanding and a cure. Mission programs include the biennial Glut1 Deficiency Conference, educational outreach programs, exhibiting at medical conferences, advocacy activities on behalf of patients and families, and funding research projects. The mission is funded entirely by donations. Foundation financial statements can be found on our website. All funds are used to better the lives of those affected with Glut1 Deficiency and their families.
How do I inform potential donors about Glut1 Deficiency and/or the Foundation?
There are many ways to inform potential donors about the Glut1 Deficiency Foundation.
- Direct potential donors to the website: www.G1DFoundation.org. The website is full of useful information about Glut1 Deficiency, the mission statement of the Foundation, as well as recent and ongoing projects that the Foundation is involved with.
- Direct potential donors to the Foundation’s Facebook page which contains all the latest news from the Foundation and the G1D community.
- Provide donors with a Foundation brochure which contains information about Glut1 Deficiency and the G1D Foundation. Foundation brochures are available on the web-site in pdf format in English, Spanish and Portuguese. Hard copies of the English version of the brochure are available upon request. Please contact GSteele@G1DFoundation.org
What is the Foundation’s website?
The official Glut1 Deficiency Foundation website is: www.G1DFoundation.org
What are the ways that donations can be sent to the foundation?
Donations are accepted online or by US Postal Mail:
- US Postal Mail – Checks can be sent to the Foundation at: The Glut1 Deficiency Foundation, PO Box 737, Owingsville, KY 40360 USA.
- Online donations are accepted by credit card or PayPal at the Foundation’s donation page: www.G1DFoundation.org/donate.
- The Foundation also conducts an annual fundraiser in February where individual families create personal web pages. Credit card donations are also accepted through these personal fundraising pages in February and throughout the year.
- The Glut1 Deficiency Foundation participates in Facebook fundraising activities. Donations may be made on our Facebook page or people may choose to do a personal fundraiser on Facebook to benefit the Glut1 Deficiency Foundation.
Just ask. Most people are generous and are willing to give to charitable organizations. Research finds that donors are motivated because it makes them feel good and they like to be recognized. The most difficult hurdle for most fundraisers is the “asking”; but what our experience tells us is that once people get over that hurdle, they find a great satisfaction and love for their fellow man when they see the generosity that most often follows. So ask, and say “Thank You”. Some will say no, but that’s okay – and a great many will surprise you with their gifts.
I am interested in hosting a fundraising event. Where can I learn more?
The Glut1 Deficiency Foundation is grateful for these individual events to raise awareness and funds to support the mission of the G1DF. Please find more information hosting about third party fundraisers here.
Can you provide more information about the official Love Some1 with Glut1 Campaign?
The Love Some1 with Glut1 campaign is the annual fundraising campaign for the Glut1 Deficiency Foundation. The campaign is run in conjunction with the world recognized “Rare Disease Day” which is the last day of February. The Love Some1 campaign runs from February 14, Valentine’s Day (a perfect day for love) through Rare Disease Day, February 28. The Foundation prepares a web-page template that it shares with the Glut1 community. Individual families then can customize their web-page by adding a photo or video, and personal story about their family or fundraiser. This web page link can then be sent to friends, families, co-workers, church family, sports teammates, etc. to encourage donations. The template will capture all of your personal fundraising results, allow you to send personal thank you notes and monitor your progress. Watch for information in early January for each year’s Love Some1 with Glut1 campaign.
How do I thank donors?
One of the most important things you can do is send a thank you (and the more personalized the better). Donors are much more likely to become repeat donors if you show your appreciation and reassure them that giving to the G1D Foundation was a good decision.
Consider the following when you write your thank you note for someone who has supported your fundraising efforts:
- Explain why the donation was so important to you and your family.
- Tell your donor what a difference their donation is going to make.
- Educate your donor on where the funds go.
I’m not able to have a fundraiser, but I would still like to help. Any suggestions?
- Join the annual Love Some1 with Glut1 Campaign! It is easy and the template is prepared for you. All you have to do is ask friends, family, etc. If you missed the annual February campaign this year, make an effort to join next year. Together we can do so much more than any of us can do alone.
- Make www.Goodsearch.com your browser of choice and use www.Goodshop.com or www.GivingAssistant.org when you shop online, selecting to support the Glut1 Deficiency Foundation. Every time you perform a web-search, $0.01 goes to the G1D Foundation. Every time you shop through Goodshop or Giving Assistant, online retailers will donate a portion (ranging from 2% – 10%) of your purchase to the G1D Foundation. The Glut1 Deficiency Foundation has received over $5,100 through these programs.
- Volunteer! The Glut1 Deficiency Foundation welcomes your time, your ideas and your unique talents. Contact any board member to learn more.
- And finally…Use your VOICE to help spread the word about Glut1 Deficiency and the G1D Foundation. All of us can help bring about more awareness and education of Glut1 in our everyday lives and through social media.
