We're happy to share the Winter Newsletter edition with some important updates from the Glut1 Deficiency Foundation. Some of the highlights you'll find:
We received some wonderful news to kick off Rare Disease Month.The Chan Zuckerberg Initiative (CZI) has granted the Glut1 Deficiency Foundation an additional $150,000 in funding to focus on organizational capacity-building and an additional year to be part of the Rare As One Network. The previous two years with Rare As One have been transformational as we've learned and grown alongside the original 29 other grantees in Cycle 1, and now we'll have the opportunity to continue that momentum with the 20 new rare disease organizations who have joined in Cycle 2.
In the next year, we are looking forward to putting so much of what we've learned and built into service, both through efforts to make our work more efficient and effective, but also initiatives we're launching to help support and drive research and serve our community in new ways. We are incredibly grateful to CZI for giving us this opportunity, believing in the power of patients, and supporting us in so many ways.