Glut1 Deficiency Foundation
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2021 Annual Report

3/31/2022

 
We are pleased to share the 2021 Annual Report, where you can learn more about how our community of supporters is helping bring progress to the Glut1 Deficiency Foundation's mission of improving lives through increased awareness, improved education, advocacy for patients and families, and support and funding for research.
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Annual Report

New CZI Grant Award

2/11/2022

 
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We received some wonderful news to kick off Rare Disease Month.The Chan Zuckerberg Initiative (CZI) has granted the Glut1 Deficiency Foundation an additional $150,000 in funding to focus on organizational capacity-building and an additional year to be part of the Rare As One Network.  The previous two years with Rare As One have been transformational as we've learned and grown alongside the original 29 other grantees in Cycle 1, and now we'll have the opportunity to continue that momentum with the 20 new rare disease organizations who have joined in Cycle 2.  ​

​In the next year, we are looking forward to putting so much of what we've learned and built into service, both through efforts to make our work more efficient and effective, but also initiatives we're launching to help support and drive research and serve our community in new ways. We are incredibly grateful to CZI for giving us this opportunity, believing in the power of patients, and supporting us in so many ways. 
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Glut1 Deficiency Foundation
PO Box 737 
Owingsville, KY 40360    
​info@G1DFoundation.org
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Copyright © 2021 Glut1 Deficiency Foundation
  • Home
  • About Glut1 Deficiency
    • What is Glut1 Deficiency?
    • Key Terms in Glut1 Deficiency
    • About the Ketogenic Diet
    • Newly Diagnosed
    • Research >
      • Research Compass
      • Research News
    • Patient Registry
    • Resources >
      • Resource List
      • Videos
      • The Patient Voice
      • Cognition and Learning
      • Family Recommended Specialists
      • COVID-19
      • Patient Stories >
        • Family Stories >
          • Share Your Story
      • Materiales en Español
      • Brochures
  • About G1DF
    • About the Foundation
    • Leadership Team
    • Medical Advisory Board
    • Scientific Advisory Board
    • Educational Events and Exhibits
    • Ways to Help
  • News
    • Glimpses | The G1DF Blog
    • Foundation Newsletters >
      • Summer 2022
      • Spring 2022
      • Winter 2022
      • Fall 2021
      • Summer 2021
      • Spring 2021
      • Winter 2021
      • Fall 2020
      • Summer 2020
      • Spring 2020
      • Winter 2020
      • Fall 2019
      • Summer 2019
      • Spring 2019
      • Winter 2019
      • Fall 2018
      • Summer 2018
      • Spring 2018
      • Winter 2018
      • Fall 2017
      • Summer 2017
      • Spring 2017
      • Winter 2017
  • Conferences and Events
    • 2022 Scientific and Family Conference
    • Conferences and Events
    • Glut1 Gatherings on Zoom
  • Get Involved
    • Family and Professional Networks
    • Volunteer Network
    • UTSW Surveys
    • Sign Up for Our Mailing List
    • Ways to Give
    • Shop to Support
    • Donate
    • Love Some1 with Glut1 >
      • 2022 Love Some1 with Glut1
    • Million Dollar Bike Ride
    • Fundraising >
      • Fundraising Help
      • Host a Fundraiser
  • Donate