Hosting a Fundraiser
Frequently, people spend their own time and money to organize a fundraising event to benefit the Glut1 Deficiency Foundation. These events can be very effective in promoting awareness in different communities and providing a substantial portion of funding for our mission programs. These fundraisers include everything from lemonade stands and garage sales to fun runs, meat raffles, ice golf, dance parties, and car shows. Some are simple and others are more elaborate, but each one is appreciated and presents a unique opportunity for the community to get involved in moving our mission forward.
Although the G1DF does not have sufficient staff to assist directly with all the fundraising activities, we appreciate and support your enthusiasm for and commitment to helping the Glut1 Deficiency community in this way. We are available to answer questions, provide resources, and offer guidance regarding your fundraising plans. Also, we may be able to connect you with another family who has already hosted an event similar to what you have in mind and can provide additional support.
If you are interested in hosting your own third-party event to benefit the G1DF, please complete our Fundraising Event Proposal Form. A representative from the G1DF will contact you about taking the next steps in planning your event!
Although the G1DF does not have sufficient staff to assist directly with all the fundraising activities, we appreciate and support your enthusiasm for and commitment to helping the Glut1 Deficiency community in this way. We are available to answer questions, provide resources, and offer guidance regarding your fundraising plans. Also, we may be able to connect you with another family who has already hosted an event similar to what you have in mind and can provide additional support.
If you are interested in hosting your own third-party event to benefit the G1DF, please complete our Fundraising Event Proposal Form. A representative from the G1DF will contact you about taking the next steps in planning your event!
Overview
What is a third-party fundraising event?
A third-party fundraising event is conducted by an individual, group or organization in the community with proceeds to benefit the Glut1 Deficiency Foundation.
Who can conduct a fundraiser on behalf of the Glut1 Deficiency Foundation?
Individuals and organizations can host an independent fundraising event to support the G1DF. These can be grateful patients and families, civic organizations, churches, schools, businesses, government agencies - anyone in the community can hold an event to support the mission of the G1DF.
Where will my donation go?
The Glut1 Deficiency Foundation works to provide help and hope for the Glut1 Deficiency community in many areas through our mission programs. If you have a passion for a specific area, we will work with you to ensure your donation goes directly to that area.
How can the Glut1 Deficiency Foundation help me?
Listed below are ways the G1DF can help with your fundraiser:
A third-party fundraising event is conducted by an individual, group or organization in the community with proceeds to benefit the Glut1 Deficiency Foundation.
Who can conduct a fundraiser on behalf of the Glut1 Deficiency Foundation?
Individuals and organizations can host an independent fundraising event to support the G1DF. These can be grateful patients and families, civic organizations, churches, schools, businesses, government agencies - anyone in the community can hold an event to support the mission of the G1DF.
Where will my donation go?
The Glut1 Deficiency Foundation works to provide help and hope for the Glut1 Deficiency community in many areas through our mission programs. If you have a passion for a specific area, we will work with you to ensure your donation goes directly to that area.
How can the Glut1 Deficiency Foundation help me?
Listed below are ways the G1DF can help with your fundraiser:
- Provide consultation on fundraisers and events
- Provide a letters to validate the authenticity of the event and its organizers
- Provide and approve the use of our logo
- Provide brochures and other resources for your event
- Help promote your event
- Our sales tax exemption number for tax exempt purchases
- Insurance or liability coverage
- Mailing lists of donors and/or vendors
- Glut1 Deficiency Foundation stationery
- Direct funding or reimbursement of event expenses
- Paid publicity
Event Ideas
You are only limited by your imagination when it comes to choosing an event. We suggest thinking of something you enjoy doing and adapting it to add a fundraising component. This way you are not starting from scratch and, in addition to giving back to a great cause, you are doing something you love!
Please visit NORD's A to Z fundraising idea page to get further inspiration for choosing an event that is a good fit for you.
Please visit NORD's A to Z fundraising idea page to get further inspiration for choosing an event that is a good fit for you.
Getting Started
Deciding to host a community fundraiser for the Glut1 Deficiency Foundation is a big step and a huge show of support - thank you! Here are some helpful tips for planning a succesful event.
- Submit the Fundraising Event Proposal Form. When you have a good idea of what you have in mind for an event and when you plan to have it, please share some details so the G1DF can review, approve, endorse, and support your event. Find the form here.
- Form a planning committee. Bringing together a group of enthusiastic and dedicated people who share an interest in raising money for a great cause will increase the probability of a successful event.
- Brainstorm. Gather members of your planning committee to brainstorm ideas for your fundraiser. Give free rein to your imagination — several heads are better than one! The more people participate now, the more committed they'll be later.
- Choose the “right” event. The type of event you choose should fit the size, interests, talents, goals and time availability of your planning committee.
- Identify your target audience. Consider who is most likely to attend and support the type of event you have selected.
- Develop a budget. Try to identify all the expenses involved with your event (invitations, postage, rental space, signage, food and catering, promotional materials, entertainment, website, advertising, etc.) Then think about possible sources of funds, and people and companies you know who may be able to donate products (food, equipment) or services (like design, printing, photography) to reduce your costs. A good goal for fundraising is to keep expenses at 30% or less of total amount raised.
- Schedule the event. Select a time that is appropriate and convenient for those who will be attending. Be sure to check local community calendars for conflicting events.
- Keep good records. Keep track of expenses, receipts, donations, and any other related details of your event.
- Develop an event timeline. A timeline is important in planning a publicity strategy for your event and keeping you organized and on track.
- Collect all funds. Finalize proceeds after your event. Donation checks or money orders should be made payable to the Glut1 Deficiency Foundation. To help us make deposits and send receipts and thank you notes in a timely manner, please submit all funds to the G1DF within 30 days of your event.
Glut1 Deficiency Foundation
PO Box 737
Owingsville, KY 40360 - Say thank you! Sending thank you letters, notes or emails to everyone who participated in or supported your event shows your appreciation and reinforces their goodwill and generosity in supporting the Glut1 Deficiency Foundation.
- Send us a summary. Email the best 3-5 photos from your event and a brief summary so that we can share in our quarterly newsletter and on social media. Email the photos and summary to Fundraising Director April Breen. abreen@G1DFoundation.org
- Start thinking of your next fundraiser. The best time to think of a new idea is right after an event or fundraiser. Think of what parts went well and what could be changed to make the next event even more successful.
Frequently Asked Questions
Why do I need to submit a Fundraising Event Proposal Form?
The Glut1 Deficiency Foundation needs to evaluate each potential partner, organization or new initiative before agreeing to a relationship to ensure it is a good fit with our mission and vision and serves the best interests of the Glut1 Deficiency community. The Fundraising Event Proposal Form provides important details so the G1DF can confirm the organizer’s intent and have the details needed to understand and better support the event.
The G1DF is prohibited from engaging in political activities or endorsing candidates or parties, so any events of a political nature cannot be approved.
How long does it take to get my Fundraising Event Proposal approved?
Proposals will be reviewed and decisions made within 10 business days of receipt.
Do I need to create a 501c3 (non-profit) organization to host a fundraiser for the Glut1 Deficiency Foundation?
No, anyone can host a fundraiser for the Glut1 Deficiency Foundation.
Can someone from the Glut1 Deficiency Foundation help me plan my event, and attend and/or speak at my event?
We are happy to provide guidance for your event, but we do not have the staff to handle the organizational and administrative tasks associated with third-party events. We are also happy to consider requests for representatives from the G1DF to attend, but we cannot make guarantees.
Can I use the Glut1 Deficiency Foundation's name and logo?
Once your fundraiser is approved, we will provide you with our logo for your marketing materials - including the official Glut1 Deficiency Foundation logo and/or the Love Some1 with Glut1 logo. We do need to review and approve all materials bearing our name and logo before they are printed or distributed, including use on websites.
Can the Glut1 Deficiency Foundation provide insurance for my event?
Because the G1DF is the beneficiary and has no direct involvement with running the fundraiser, we cannot provide insurance for third-party events. The event organizer is responsible for obtaining insurance for the event if necessary.
Can the Glut1 Deficiency Foundation help me get a permit, license, or contract for my event?
The organization and execution of the event is the responsibility of the event organizer. The event organizer should obtain any necessary permits, licenses, or contracts independently.
Can I use the Glut1 Deficiency Foundation's Tax Exemption number?
Because the Glut1 Deficiency Foundation is not hosting your event, it is considered a third-party event. For this reason, you will not be able to use the G1DF's tax-exempt certificates to make purchases or secure services related to the event. However, we can provide a letter for your use confirming that your event is to benefit the Glut1 Deficiency Foundation and provide our federal tax ID number and IRS 501c3 designation letter if requested.
Will each of my donors get a receipt?
The Glut1 Deficiency Foundation cannot issue charitable tax receipts for any payments made directly to your third-party event. If donations are made directly to the G1DF at your event and the donor would like to have a receipt, please be sure the donation check is made payable to the Glut1 Deficiency Foundation and the donor's name and address appear on the check.
Please note that there are complex regulations around fundraising and the distribution of charitable tax receipts. The G1DF has the honor of being recognized as a tax-exempt charitable organization by the IRS (Internal Revenue Service). Any failure to follow these regulations can put our charity status, and our mission, at risk.
For more information and questions about any specific activities, please contact the Glut1 Deficiency Foundation or your tax advisor.
Do you have a sample letter for fundraisers?
Because there are so many different types of fundraiser, the following is a good general format to follow:
Does the Foundation have event materials that I can use for my fundraiser?
The Glut1 Deficiency Foundation has invested in the creation of logos and materials to create a professional and reputable image of the G1DF and to spread awareness in a consistent way in the community. Official Glut1 Deficiency Foundation logos are available upon request for use in your fundraiser and can be provided once your fundraiser is approved.
The Glut1 Deficiency Foundation also has a limited number of brochures, buttons, bracelets, pens, and a banner that can be provided for your event. Please keep in mind that all marketing materials are created at a cost to the G1DF, so just please help us make sure they are well-utilized and return any unused materials after your event.
How do I promote my fundraiser?
Begin with letters and emails to your personal contacts, as well as postings on social media such as Facebook and Twitter. Most local newspapers have a free community happenings section where you can advertise your event. Some families have had feature stories written about their child and why they are fundraising. Send an email to the newspaper and tug at heartstrings! Also, most local television and radio stations have event calendars that will include your fundraiser (check their websites). Many stores have an area in their lobby to post flyers. Ask your child’s school/doctor’s offices, etc. to post a flyer. Depending on the type of event you having, you may consider putting up posters in high traffic areas.
The Glut1 Deficiency Foundation can list your approved fundraiser on our website, on our social media, and in our quarterly newsletters.
How do I create a fundraising page on the web?
Making a webpage for your fundraiser is a great way to get the word out about your event and to facilitate giving. Webpages make it easy to communicate to large groups of people and provides for easy payment methods. Best of all, there are readily available resources that make personalizing a webpage and fundraising online very easy, some of these include: Crowdrise, Razoo, Facebook Events, and Gofundme. The Glut1 Deficiency Foundation uses the Flipcause donor platform and has the capability of making customized event pages for you upon request.
How do I donate the proceeds of my event?
After the fundraiser is complete, please send us all checks or money orders that are addressed to the Glut1 Deficiency Foundation as well as a lump sum payment of any other proceeds from your event. We suggest making photocopies of the all checks you send to the G1DF. Once funds are received and checks have cleared, the appropriate donation receipts and thank you notes will be mailed.
Glut1 Deficiency Foundation
PO Box 737
Owingsville, KY 40360
Should I send a personal thank you letter or card to my donors?
One of the most important things you can do is send a thank you, and the more personalized the better! Donors are much more likely to become repeat donors if you show your appreciation and reassure them that giving to the G1DF was a good decision.
Consider the following when you write your thank you note for someone who has supported your fundraising efforts:
Who do I contact for more information?
Glenna Steele, Executive Director: gsteele@G1DFoundation.org
April Breen, Fundraising Director: abreen@G1DFoundation.org
The Glut1 Deficiency Foundation needs to evaluate each potential partner, organization or new initiative before agreeing to a relationship to ensure it is a good fit with our mission and vision and serves the best interests of the Glut1 Deficiency community. The Fundraising Event Proposal Form provides important details so the G1DF can confirm the organizer’s intent and have the details needed to understand and better support the event.
The G1DF is prohibited from engaging in political activities or endorsing candidates or parties, so any events of a political nature cannot be approved.
How long does it take to get my Fundraising Event Proposal approved?
Proposals will be reviewed and decisions made within 10 business days of receipt.
Do I need to create a 501c3 (non-profit) organization to host a fundraiser for the Glut1 Deficiency Foundation?
No, anyone can host a fundraiser for the Glut1 Deficiency Foundation.
Can someone from the Glut1 Deficiency Foundation help me plan my event, and attend and/or speak at my event?
We are happy to provide guidance for your event, but we do not have the staff to handle the organizational and administrative tasks associated with third-party events. We are also happy to consider requests for representatives from the G1DF to attend, but we cannot make guarantees.
Can I use the Glut1 Deficiency Foundation's name and logo?
Once your fundraiser is approved, we will provide you with our logo for your marketing materials - including the official Glut1 Deficiency Foundation logo and/or the Love Some1 with Glut1 logo. We do need to review and approve all materials bearing our name and logo before they are printed or distributed, including use on websites.
Can the Glut1 Deficiency Foundation provide insurance for my event?
Because the G1DF is the beneficiary and has no direct involvement with running the fundraiser, we cannot provide insurance for third-party events. The event organizer is responsible for obtaining insurance for the event if necessary.
Can the Glut1 Deficiency Foundation help me get a permit, license, or contract for my event?
The organization and execution of the event is the responsibility of the event organizer. The event organizer should obtain any necessary permits, licenses, or contracts independently.
Can I use the Glut1 Deficiency Foundation's Tax Exemption number?
Because the Glut1 Deficiency Foundation is not hosting your event, it is considered a third-party event. For this reason, you will not be able to use the G1DF's tax-exempt certificates to make purchases or secure services related to the event. However, we can provide a letter for your use confirming that your event is to benefit the Glut1 Deficiency Foundation and provide our federal tax ID number and IRS 501c3 designation letter if requested.
Will each of my donors get a receipt?
The Glut1 Deficiency Foundation cannot issue charitable tax receipts for any payments made directly to your third-party event. If donations are made directly to the G1DF at your event and the donor would like to have a receipt, please be sure the donation check is made payable to the Glut1 Deficiency Foundation and the donor's name and address appear on the check.
Please note that there are complex regulations around fundraising and the distribution of charitable tax receipts. The G1DF has the honor of being recognized as a tax-exempt charitable organization by the IRS (Internal Revenue Service). Any failure to follow these regulations can put our charity status, and our mission, at risk.
For more information and questions about any specific activities, please contact the Glut1 Deficiency Foundation or your tax advisor.
Do you have a sample letter for fundraisers?
Because there are so many different types of fundraiser, the following is a good general format to follow:
- First paragraph: Introduce yourself, your child, and your purpose for writing (details of your fundraising event)
- Middle paragraph(s): Provide more details about Glut1 Deficiency and the Foundation. Include the foundation’s mission statement (www.G1DFoundation.org) and how important donor/participant support is (this can be divided into two paragraphs if need be)
- Last paragraph: Explain exactly what it is you want your letter recipient to do and how they can do it.
Does the Foundation have event materials that I can use for my fundraiser?
The Glut1 Deficiency Foundation has invested in the creation of logos and materials to create a professional and reputable image of the G1DF and to spread awareness in a consistent way in the community. Official Glut1 Deficiency Foundation logos are available upon request for use in your fundraiser and can be provided once your fundraiser is approved.
The Glut1 Deficiency Foundation also has a limited number of brochures, buttons, bracelets, pens, and a banner that can be provided for your event. Please keep in mind that all marketing materials are created at a cost to the G1DF, so just please help us make sure they are well-utilized and return any unused materials after your event.
How do I promote my fundraiser?
Begin with letters and emails to your personal contacts, as well as postings on social media such as Facebook and Twitter. Most local newspapers have a free community happenings section where you can advertise your event. Some families have had feature stories written about their child and why they are fundraising. Send an email to the newspaper and tug at heartstrings! Also, most local television and radio stations have event calendars that will include your fundraiser (check their websites). Many stores have an area in their lobby to post flyers. Ask your child’s school/doctor’s offices, etc. to post a flyer. Depending on the type of event you having, you may consider putting up posters in high traffic areas.
The Glut1 Deficiency Foundation can list your approved fundraiser on our website, on our social media, and in our quarterly newsletters.
How do I create a fundraising page on the web?
Making a webpage for your fundraiser is a great way to get the word out about your event and to facilitate giving. Webpages make it easy to communicate to large groups of people and provides for easy payment methods. Best of all, there are readily available resources that make personalizing a webpage and fundraising online very easy, some of these include: Crowdrise, Razoo, Facebook Events, and Gofundme. The Glut1 Deficiency Foundation uses the Flipcause donor platform and has the capability of making customized event pages for you upon request.
How do I donate the proceeds of my event?
After the fundraiser is complete, please send us all checks or money orders that are addressed to the Glut1 Deficiency Foundation as well as a lump sum payment of any other proceeds from your event. We suggest making photocopies of the all checks you send to the G1DF. Once funds are received and checks have cleared, the appropriate donation receipts and thank you notes will be mailed.
Glut1 Deficiency Foundation
PO Box 737
Owingsville, KY 40360
Should I send a personal thank you letter or card to my donors?
One of the most important things you can do is send a thank you, and the more personalized the better! Donors are much more likely to become repeat donors if you show your appreciation and reassure them that giving to the G1DF was a good decision.
Consider the following when you write your thank you note for someone who has supported your fundraising efforts:
- Explain why the donation was so important to you and your family.
- Tell your donor what a difference their donation is going to make.
- Educate your donor on where the funds go.
Who do I contact for more information?
Glenna Steele, Executive Director: gsteele@G1DFoundation.org
April Breen, Fundraising Director: abreen@G1DFoundation.org
Thank you for helping the Glut1 Deficiency Foundation in its mission of increased awareness, improved education, advocacy for patients and families, and support and funding for research.
