Olivia

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Hello.  My name is Olivia Elizabeth Guziewicz.  I am 19 years old. I was diagnosed with Glut1 just before my 10th Birthday. It took almost a decade, and moving from Connecticut to New Hampshire before a doctor finally properly diagnosed me. If not for my neurologist Dr. Richard P. Morse at Dartmouth Hitchcock Medical Center and Dr. Darryl C. DeVivo,  I probably would not be doing as well in life as I am today.

Glut1 affects me mostly with seizures. I am on the Modified Ketogenic diet and take anti-epileptic medications as well.  I use a wheelchair for safe mobility and independence on days when I have seizures, hot days and on marathon shopping days.  As I have grown, and through OT and PT my balance and ataxia have improved tremendously . I do pretty well in school.  I walked with my 2017 graduation class in June,  I will continue in school until I am 21.  I live in Enfield, New Hampshire with my family. I have a goal of living in an apartment by the time I am 25.  

I enjoy many activities such as swimming, running and horseback riding.  I participate with Unified Skiing in the winter. Initially I was in a ski sled I now ski independently.  I also play basketball on two different Unified Basketball Teams.  I would say that of all the sports I participate in, I excel in swimming and basketball.

I love all animals, however dogs and horses are my favorite. I have a Carin Terrier named Piper.  One day I hope to have a horse. My family is working on getting me a seizure dog.

I have some amazing friends, and my  family and I are always doing something or going somewhere. I am very excited to attend the Glut1 conference in Nashville.  It will be nice to see other individuals with Glut1 again.  I have not seen them since the Illinois and Kentucky conferences.
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I look forward to seeing you all soon!