Glut1 Deficiency Foundation
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Parys


Parys Carey
Parys was diagnosed 2 and a half years ago at Great Ormond Street in London.  She also has microcephaly, cerebral atrophy, epilepsy,learning difficulties. etc.  She does not talk or walk but is trying very hard.  Parys is on the ketogenic diet for life.  Some days are better than others, if she does not eat a meal we have to feed her through her peg.  She is the most lovable child any parent could wish for and if it is up to her she will be walking, talking, and doing everything else a little 4 year old does, god willing.  It is our dream to see a world specialist in Glut1 Deficiency one day.
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Glut1 Deficiency Foundation
PO Box 737 
Owingsville, KY 40360    
​info@G1DFoundation.org

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Copyright © 2018 Glut1 Deficiency Foundation
  • Home
  • About Glut1 Deficiency
    • What is Glut1 Deficiency?
    • Key Terms in Glut1 Deficiency
    • About the Ketogenic Diet
    • Brochures
    • Professional Guide
    • Newly Diagnosed
    • Educational Video Project
    • Resources
    • Cognition and Learning
    • Related Links
    • Research News
    • Recent Publications
    • Patient Registry
    • Videos
    • Materiales en Español
    • Family Recommended Specialists >
      • Recommend a Specialist
  • About G1DF
    • About the Foundation
    • Leadership Team
    • Medical Advisory Board
    • Scientific Advisory Board
    • Educational Events and Exhibits
    • Ways to Help
    • Research Grant Program
  • News
    • Recent News
    • Foundation Newsletters >
      • Winter 2018
      • Fall 2017
      • Summer 2017
      • Spring 2017
      • Winter 2017
  • Conferences
    • Conferences
    • 2019 Conference - Washington, DC
    • Past Conferences >
      • 2017 Conference - Nashville
      • 2015 conference – Orlando
      • 2013 Conference – Houston >
        • 2013 Houston Conference Webcasts
      • 2012 Conference – Indianapolis
      • Conference Summary Reports
  • Stories
    • Stories >
      • Emily
      • Bobby
      • Lilly
      • Allison
      • Katie
      • Tessa
      • Justin
      • Whitney
      • Ryan
      • Erik
      • Pattygrace
      • Chris
      • Sam
      • Collette
      • Phil
      • Joshua
      • DeAndre
      • Matt
      • Jayden
      • Brittany
      • Macie
      • Braden
      • Dalton
      • Jordan
      • Joelle
      • Sabrina
      • Thomas
      • Haley
      • Reed
      • Ben
      • Parys
      • Ronnie-Louise
      • Colin
      • Nathan
      • Lee
      • Dominic
      • Raina
      • Dylan
      • Brayden
      • Elli
      • Jacob
      • Rian
      • Hailey
      • Olivia
      • Addie
      • Drake
    • Share Your Story
  • Get Involved
    • Ways to Give
    • Shop to Support
    • Donate
    • Sign Up for Our Mailing List
    • Love Some1 with Glut1 >
      • 2018 Love Some1
    • Fundraising >
      • Fundraising Help
  • Contact Us
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