Members of the Glut1 Deficiency community had the opportunity to be involved in some wonderful awareness and advocacy events in honor of Rare Disease Day. We are thankful for everyone who takes time to get engaged and work to make a difference for all patients and families.
Read more about the special activities here.
Please find our latest newsletter at the link below.
It has been a busy time and we have lots of news to share. We are gearing up for our annual Love Some1 with Glut1 campaign, and we hope you'll take the time to watch our very special "thank you" video.
We have research updates to share and we debut two new features - Patient Stories and Ask the Expert. We announce new members of our Advisory Boards. We share reminders about the National Walk for Epilepsy, upcoming conferences, and have some family news to pass along.
It's time to share the love!
The annual Love Some1 with Glut1 awareness and fundraising campaign will launch on Valentine's Day (February 14th) and run through Rare Disease Day (February 28th). This campaign is the primary source of support for the Glut1 Deficiency Foundation's mission programs for increased awareness, improved education, advocacy for patients and families, and support and funding for research.
The Glut1 Deficiency Foundation works hard to bring help and hope to everyone in the global G1D community, and we are hoping you will help us continue that mission. Please consider signing up as a Fundraiser during the campaign - it is quick, easy and so impactful! You could also show your support by making a tribute donation in honor of your loved one with Glut1.
Find out more about the work of the G1D Foundation and how to sign up or make a donation at the link below. You can also hear words of thanks and gratitude from many patients themselves in our special 2018 Love Some1 with Glut1 campaign video.
If you have questions or need help, please email Glenna at gsteele@G1DFoundation.org
The campaign will launch on Valentine's Day, and we will be sending more information soon about how you can sign up to join us on our brand new Flipcause platform this year.
In the meantime, we are preparing a campaign video to share a simple message of thanks to all those who support the Glut1 Deficiency Foundation and help put its global mission into action.
Please click here to find out more about how you can take part! THANK YOU!
We are thrilled to share this wonderful project the Buckner family (Brain, Heather, and Katelyn) took part in - The Pull-A-Part Challenge. Brian was part of a team that competed in creating a truck from other vehicle parts, helping raise awareness of Glut1 Deficiency and earning a donation to the charity of their choice - the Glut1 Deficiency Foundation!
It's obvious the Buckner's have talented and generous friends who think an awful lot of their family....and we are also grateful to Pull-A-Part for sponsoring this event. You can watch the video at the link below! Thanks to all involved!