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Registration
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Conference registration is now open through June 7, 2019.
Early Registration Rates through December 31st:
Glut1 Deficiency Patients: free
Adult Family Members: $150
Siblings Under 18: $75
Child Care Providers: $100 with meals included, free with no meals included
Professionals: $200
Twilight Monument and US Capitol Tour Tickets: $35 per person (this rate will not increase after December 31st)
Early Registration Rates through December 31st:
Glut1 Deficiency Patients: free
Adult Family Members: $150
Siblings Under 18: $75
Child Care Providers: $100 with meals included, free with no meals included
Professionals: $200
Twilight Monument and US Capitol Tour Tickets: $35 per person (this rate will not increase after December 31st)
adult family, professional, and patient registrations include:
sibling regsitrations include:
child care provider registrations include:
- all presentations
- all social events (Twilight Monument Tour and US Capitol Tour are separate ticketed events)
- all exhibit areas
- all meals (breakfast and lunch on Thursday and Friday)
- activity room access
- poster session access
sibling regsitrations include:
- activity room access
- all social events (Twilight Monument Tour and US Capitol Tour are separate ticketed events)
- all exhibit areas
- all meals (breakfast and lunch Thursday and Friday)
(no access to conference presentations)
child care provider registrations include:
- activity room access
- all social events (Twilight Monument Tour and US Capitol Tour are separate ticketed events)
- all exhibit areas
- all meals (breakfast and lunch Thursday and Friday) or no meals depending on registration option chosen
- please note that child care providers are those coming along to provide supervision/child care - they will have access to the social events but not conference presentations
Twilight Monument Tour and US Capitol Tour:
Join us for two special social outings with our Glut1 Deficiency family! Both tours are included in the ticket price.
Friday, July 12th: Twilight Monument Tour 6:30 pm - 9:30 pm
Friday night's social event will be a Twilight Monument Tour around Washington, DC. Tours will be led by professional guides and transportation will be by chartered bus with wheelchair access and restrooms on board. We will be picked up at the conference hotel at 6:30 pm and dropped off there around 9:30 pm. This tour is a great way to see the highlights of the city and the beautiful monuments by twilight, with several stops for closer exploration scheduled along the route.
Saturday, July 13th: Group Tours of the US Capitol Building 9:00 am - 1:00 pm
Saturday morning's US Capitol Building Tour will be chartered bus transportation between the conference hotel and the Capitol building with a 90 minute guided walking tour while there. There will be extra time for the gift shop, cafeteria, and some exploring while on the Capitol grounds. The bus will pick us up at our conference hotel at 9:00 am and leave the Capitol at 1:00 pm to return to the hotel.
Conference Assistance:
Some states have special programs through their Councils on Developmental Disabilities that help cover some costs associated with going to educational conferences. Programs and funding varies, but it is worth exploring options. We have compiled a list of agency websites for each state, which you can find here. We suggest starting the process early, and please let us know if you apply for assitance and need any documentation to support the application.
Adult Glut1 Deficiency patients aged 18 and older will be eligible for a $500 stipend to help offset travel expenses to attend the conference. These funds are available through a special nonprofit grant secured by the G1DF for our special Adult Experiences in Glut1 Deficiency Project. We will be sharing more details about these stipends and the special adult programming at the conference as the grant contract and details are finalized.
Some states have special programs through their Councils on Developmental Disabilities that help cover some costs associated with going to educational conferences. Programs and funding varies, but it is worth exploring options. We have compiled a list of agency websites for each state, which you can find here. We suggest starting the process early, and please let us know if you apply for assitance and need any documentation to support the application.
Adult Glut1 Deficiency patients aged 18 and older will be eligible for a $500 stipend to help offset travel expenses to attend the conference. These funds are available through a special nonprofit grant secured by the G1DF for our special Adult Experiences in Glut1 Deficiency Project. We will be sharing more details about these stipends and the special adult programming at the conference as the grant contract and details are finalized.
