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Registration
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Conference registration is now open through July 1, 2019.
Glut1 Deficiency Patients: free
Adult Family Members: $175
Siblings Under 18: $100
Child Care Providers: $100 with meals included, free with no meals included
Professionals: $225
Twilight Monument and US Capitol Tour Tickets: $35 per person
*please note that we are at capacity for the US Capitol Tour on Saturday morning and can not guarantee a spot for anyone
who has not yet purchased a ticket. We are happy to put you on a wait list.
The Glut1 Deficiency Foundation is contributing a substantial amount toward overall costs of the conference so that these expenses don't have to be passed on to attendees. Registration fees go towards helping cover the meals provided.
Adult patients aged 18 and over will be eligible for a limited number of $500 travel stipends to attend the conference, thanks to a special PCORI conference grant the Glut1 Deficiency Foundation has received. Stipends will be paid at or just after the conference, and these will be awarded on a first come/first served basis relative to the individual's registration date. The G1DF will announce here if we reach capacity for travel stipend eligibility.
Glut1 Deficiency Patients: free
Adult Family Members: $175
Siblings Under 18: $100
Child Care Providers: $100 with meals included, free with no meals included
Professionals: $225
Twilight Monument and US Capitol Tour Tickets: $35 per person
*please note that we are at capacity for the US Capitol Tour on Saturday morning and can not guarantee a spot for anyone
who has not yet purchased a ticket. We are happy to put you on a wait list.
The Glut1 Deficiency Foundation is contributing a substantial amount toward overall costs of the conference so that these expenses don't have to be passed on to attendees. Registration fees go towards helping cover the meals provided.
Adult patients aged 18 and over will be eligible for a limited number of $500 travel stipends to attend the conference, thanks to a special PCORI conference grant the Glut1 Deficiency Foundation has received. Stipends will be paid at or just after the conference, and these will be awarded on a first come/first served basis relative to the individual's registration date. The G1DF will announce here if we reach capacity for travel stipend eligibility.
adult family, professional, and patient registrations include:
sibling regsitrations include:
patient care provider registrations include:
- all presentations
- all social events (Twilight Monument Tour and US Capitol Tour are separate ticketed events)
- all exhibit areas
- all meals (breakfast and lunch on Thursday and Friday)
- activity room access
- poster session access
sibling regsitrations include:
- activity room access
- all social events (Twilight Monument Tour and US Capitol Tour are separate ticketed events)
- all exhibit areas
- all meals (breakfast and lunch Thursday and Friday)
(no access to conference presentations)
patient care provider registrations include:
- activity room access
- all social events (Twilight Monument Tour and US Capitol Tour are separate ticketed events)
- all exhibit areas
- all meals (breakfast and lunch Thursday and Friday) or no meals depending on registration option chosen
- please note that child care providers are those coming along to provide supervision/child care - they will have access to the social events but not conference presentations
Twilight Monument Tour and US Capitol Tour:
Join us for two special social outings with our Glut1 Deficiency family! Both tours are included in the ticket price.
Friday, July 12th: Twilight Monument Tour 6:30 pm - 9:30 pm
Friday night's social event will be a Twilight Monument Tour around Washington, DC. Tours will be led by professional guides and transportation will be by chartered bus with wheelchair access and restrooms on board. We will be picked up at the conference hotel at 6:30 pm and dropped off there around 9:30 pm. This tour is a great way to see the highlights of the city and the beautiful monuments by twilight, with several stops for closer exploration scheduled along the route.
Saturday, July 13th: Group Tours of the US Capitol Building 9:00 am - 1:00 pm
Saturday morning's planned US Capitol Building Tour will be chartered bus transportation between the conference hotel and the Capitol building with a 90 minute guided walking tour while there. There will be extra time for the gift shop, cafeteria, and some exploring while on the Capitol grounds. Plans are for a chartered bus to pick us up at our conference hotel at 9:00 am and leave the Capitol at 1:00 pm to return to the hotel.
Conference Assistance:
Some states have special programs through their Councils on Developmental Disabilities that help cover some costs associated with going to educational conferences. Programs and funding varies, but it is worth exploring options. Each state is mandated to have its own developmental disabilities council, so check to see if there are funds available. Find more information and links to each state's agency here. We suggest starting the process early, and please let us know if you apply for assistance and need any documentation to support the application.
Adult Glut1 Deficiency patients aged 18 and older will be eligible for a $500 stipend to help offset travel expenses to attend the conference. These funds are available through a special nonprofit grant secured by the G1DF for our special Adult Experiences in Glut1 Deficiency Project. Stipends will be paid either at the conference or just after to those who attend.
Some states have special programs through their Councils on Developmental Disabilities that help cover some costs associated with going to educational conferences. Programs and funding varies, but it is worth exploring options. Each state is mandated to have its own developmental disabilities council, so check to see if there are funds available. Find more information and links to each state's agency here. We suggest starting the process early, and please let us know if you apply for assistance and need any documentation to support the application.
Adult Glut1 Deficiency patients aged 18 and older will be eligible for a $500 stipend to help offset travel expenses to attend the conference. These funds are available through a special nonprofit grant secured by the G1DF for our special Adult Experiences in Glut1 Deficiency Project. Stipends will be paid either at the conference or just after to those who attend.
Attendee Information:
Please find a host of additional planning information here.
Please find a host of additional planning information here.
