Resources

Some listed resources contain links to third party external sites, for which the Glut1 Deficiency Foundation has no responsibility or oversight.
Glut1 Deficiency
Professional Resources
Ketogenic Diet
Support Groups and Family Blogs
International Glut1 Deficiency Parent Groups
Benefits for People with Disabilities​ Medical Travel Assistance
  • Patient AirLift Services (PALS) is an organization whose mission is to arrange free air transportation based on need to individuals requiring medical care and for other humanitarian purposes.
  • Miracle Flights provides individuals and their families free flights to distant, specialized care, including valuable second opinions, follow-up visits, and clinical trials. They also fly people to retrieve/train service dogs.
  • J Kiffin Penry Patient Travel Assistance Fund:  travel assistance from the Epilepsy Foundation for epilepsy/seizure disorder patients who must travel 50 miles or more from their home for specialized medical care.

Epilepsy Resources   
Movement Disorder Resources Financial Assistance
  • CHIP Children’s Health Insurance Program.
  • Social Security Benefits for children with disabilities.
  • Tax Strategies for Parents of Kids with Special Needs
  • Medicaid makes it possible for certain low-income individuals and families to get health care when they could otherwise not afford it. It is available only to certain low-income individuals and families who fit into an eligibility group that is recognized by federal and state law. Medicaid sends payments directly to health care providers.
  • Medicaid waivers are available for certain individuals who do not meet the income limits that Medicaid requires. It may cover the expenses that primary health insurance does not. The following page contains information on the different Medicaid waiver programs available in each state.

Medication Assistance Programs
Special Education Laws
  • Wrightslaw is a website that provides reliable information and resources about legal issues concerning education law, special education law, and advocacy for children with disabilities.
  • American Bar Association for assistance locating a local attorney or finding reduced-cost legal aid
  • The ADA is a federal civil rights law that forbids discrimination based on disability in certain situations. The act defines a disability as a physical or mental impairment that substantially limits one or more major life activities.
  • My Child’s Special Needs:  federal law information from the Department of Education.
  • College Guide for Disabled Students

​Other Resources