Ronnie-Louise

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Ronnie-Louise Farley

We discovered ronnie-louise had glut 1 when she was 6 weeks old, after a long wait for a diognosis, she hasent had the best start to life as she was in hospital for 8 weeks, she became very unwell shortly after her birth and thats how we discovered she had glut 1 whilst we was in hospital. its been a very hard few months as she is my first daughter and had never heard of glut 1 so now im looking into it, and want to help find a cure and make more people aware of this.