Share Your Story
Reading about the experiences of patients and families in the Glut1 Deficiency community is a very powerful and effective way to connect us all and to better understand the challenges around getting a diagnosis and what a difference that can make. We are grateful you want to be part of this important program.
When writing your story, you may want to make sure to touch on these areas:
When writing your story, you may want to make sure to touch on these areas:
- Past: path to diagnosis and age
- Present: what changes have come because of the diagnosis
- Future: what questions, concerns, and hope do you have for what lies ahead
We will have it up on our site soon and will let you know when it is published. Thank you so much!