Terms of Use


The Glut1 Deficiency Foundation provides information and services available on our website subject to the following terms of use. By using our website and communicating with us, you agree to be bound by these terms of use.


Please review our Privacy Policy below so that you will understand how we may collect and use your personal information.

Information on our website

We publish on our website information regarding Glucose Transporter Type 1 Deficiency Syndrome (Glut1 Deficiency), our organization’s activities and other information relevant to the Glut1 Deficiency community. By using our website and communicating with us you acknowledge and agree that any information you may obtain from our website or from any communication that we may have with you is for informational purposes only and should not be substituted for informed and qualified medical care. We attempt to be as accurate as possible in providing information to our users; however we do not warrant that the information you obtain from us or our website is accurate, complete, reliable or current.

Intellectual Property

Content available on our website may be protected by U.S. and international copyright laws. The logos displayed on our website belong to us or to third parties.  Content on our website may not be used, reproduced, sold, accessed, modified, or otherwise exploited for any commercial purpose without our prior written consent.

Limited License

We grant you a limited non-exclusive license to access and make personal use of our website. You may not, without our prior written consent, (i) use framing techniques to enclose our website or any portion of it; (ii) make any commercial use of our website or its content; (iii) create any derivative work based upon our website or its content; or (iv) use any meta tags or other hidden text containing our name. You may create a hyperlink to the home page of our website for personal, non-commercial use only. A website that links to our website (i) may not imply that we are endorsing that website or its products or services; (ii) may not misrepresent its relationship with us; (iii) may not contain content that could be viewed as offensive, controversial or inappropriate for children; and (iv) may not portray us in a false, misleading, or objectionable manner, or associate us with undesirable products, services, or opinions.  If, in our sole discretion, we request that you remove any link to our website, you must immediately remove the link.

Third Party Links

We are not responsible for the content, products, or services in third party websites linked to our website. Links appearing on our website are for your convenience only, and are not an endorsement by us of the linked content. You should carefully review the terms of use of other websites that you visit.


We welcome contributions of information, inquiries, feedback, suggestions, ideas or other content you may wish to provide us. Subject to the terms of our Privacy Policy, by contributing content to us, you hereby grant us a nonexclusive, royalty-free, perpetual, transferable, irrevocable, and fully sublicensable right to use, reproduce, modify, publish, translate, create derivative works from, and display the contributed content, alone or as part of other works. If you contribute content to us, you represent and warrant that you own or otherwise control the rights to your content.

Representations and Warranties; Limitation of Liability

Our website is presented "as is". We make no representations or warranties of any kind, express or implied, in connection with our website or its content, including but not limted to warranties of accuracy, non-infringement or fitness of a particular purpose. To the maximum extent permitted  by law we will not be liable for any indirect, special, incidental, or consequential damages related to our website or its content, regardless of the form of action, whether in contract, tort (including negligence), or otherwise, even if we have been advised of the possibility of such damages.


You acknowledge and agree that these Terms of Use, together with our Privacy Policy, are the complete and exclusive agreement between us concerning your communications with us and your use of our website. We may change these Terms of Use at any time and any changes will take effect immediately upon posting to our website. If you have any questions regarding these Terms of Use, please contact us by email at [email protected].

Last updated on September 6, 2022.