Glut1 Deficiency Foundation

Board of Directors

Application and Guidelines


The Glut1 Deficiency Foundation is a nonprofit family organization dedicated to improving lives in the Glut1 Deficiency community through increased awareness, improved education, advocacy for patients and families, and support and funding for research. The G1DF is organized and led by parents who have a vision to make Glut1 Deficiency easy to diagnose early, treat effectively, and cure completely.

Although there are no current open seats on the Glut1 Deficiency Foundation Board of Directors, we are proactively seeking applications from professional and committed individuals who have an interest in serving in the future. It is our goal to represent a broad range of diverse experiences in our leadership, and we are so grateful to those who are willing to serve the community and the organization in this way.


The purpose of the application is to seek out ideal candidates for future board service as part of our strategic plan and succession planning. These applications will enable the current Glut1 Deficiency Foundation Board of Directors to survey interest from the community and when vacancies occur to use the information to make an informed decision and vote on which candidate(s) would serve the organization best.

Applicants interested in serving on the Board of Directors should first read and understand the qualifications for this role and the expectations before submitting an application.

  • To serve on the Board of Directors, you must be an individual with Glut1 Deficiency or the spouse, parent/guardian, or other family member of the individual.
  • All Board of Director roles are volunteer positions.
  • Terms are 3 years with a maximum of 3 total terms.
  • Applicants can serve from anywhere in the United States.

Board of Directors Application