Family Stories


Glimpses of the Glut1 Deficiency experience.

We hope you find something new yet also something familiar when you take a peek inside some of the special stories from our community.

family stories

Thank you to all who have participated and shared your unique and inspiring journey in the world of Glut1 Deficiency. These stories provide solace to families and enlightenment to the medical community. Your help plays an important role in our efforts to raise awareness and spread education.

We hope these stories bring smiles to your faces and add warmth to your hearts, for they are indeed glimpses of exceptional families and amazing children.

We want to hear from you! Share YOUR story with our community! You never know who needs to hear it. We feature stories on our social media pages along with our website. Fill out our online form or send inquiries to [email protected]