Meet our leadership team.

Jason is a registered professional engineer and holds a degree in Mechanical Engineering. He has been employed with the Louisiana Department of Environmental Quality for 20 years. He lives in Denham Springs, Louisiana with his wife, Keri, two sons, Cote and Scott, and daughter, Katie. Katie was diagnosed with Glut1 Deficiency in 2008 at the age of 4.

April earned her Doctor of Veterinary Medicine degree from Oklahoma State University. She’s been practicing small animal medicine for more than 20 years. April lives in Oktaha, Oklahoma with her husband, Allen, and their two daughters, Ashton and Abby. Abby was diagnosed with Glut1 Deficiency at 6 years of age in 2012.

Rob is a retired Product Safety and Regulatory Manager of Procter & Gamble with 30 years of experience. He earned a PhD in Environmental Engineering and Chemistry from the University of Minnesota and BS and MS degrees from Rutgers University. After retirement he worked with Secondary school teachers as a Resource Team member of the University of Cincinnati Engineering and Enhanced Math and Science Program (CEEMS). Rob volunteers with environmental organizations including Engineers without Borders and the Citizens Climate Lobby. Rob lives in Cincinnati, Ohio with his wife, Paula, and has a daughter, Sara, and son, JR. JR was diagnosed with Glut1 Deficiency in 2008 at the age of 17.

Debbie holds a BA in Psychology from UCLA, an MS in Accounting and Taxation from SUNY Albany, and a BS in Occupational Therapy from USI. She is a retired CPA who practiced with KPMG as a Tax Accountant specializing in financial institutions prior to becoming a mom. She is also a retired OT who worked with at risk newborns in the NICU. Debbie resides in Evansville, Indiana with her husband, Greg, (past VP and founding board member of the Glut1 Deficiency Foundation), and her son, Dalton, who was diagnosed with Glut1 Deficiency at age 5. Debbie and Greg also have a daughter, Madison, who earned a BS in Biological Engineering from MIT and has conducted research benefitting Glut1 Deficiency.

Erin is an Occupational Therapist who graduated from Thomas Jefferson University and currently works with children. She is the team captain for the Glut1 DS team in Penn Medicine’s Orphan Disease Center’s annual Million Dollar Bike Ride. Erin lives in the Philadelphia area with her husband, Walter, and daughters Gabriella and Millle. Millie was diagnosed with Glut1 Deficiency in 2012 at the age of 3.

Kelly Jones holds a BA in Journalism/Public Relations from California State University, Chico. She has been employed by the Sacramento Kings of the NBA, as well as both residential and commercial HVAC companies, before concentrating on being a full-time mom. Kelly currently resides in Rancho Cordova, California with husband, Matt, and son, Reece. Reece was diagnosed with Glut1 Deficiency three days before his 8th birthday in 2015.

Maria Rebbecchi is a registered nurse with a Bachelor’s of Science in nursing. She has worked in the emergency room and more recently urgent care over the last 15 years. She lives in Pine Hill, New Jersey with her husband, Tom, her daughter, Iris, and her son, Dominic, who has Glut1 Deficiency. Dominic was diagnosed in 2013, at the age of 3, at the Children’s Hospital of Philadelphia. Motivated by her son’s challenges and diagnosis, Maria quickly became involved with the G1DF and was driven to help others who had gone through what she had experienced. Maria’s passion is to help advocate for earlier diagnosis, spread awareness of Glut1 Deficiency, and support Glut1 families in need.

April holds a BA in Environmental Studies from The University at Buffalo. She is a Public Health Specialist at the New York State Department of Health conducting surveillance on Muscular Dystrophy and supports public health activities relating to disease outbreaks within western New York. She lives in Cambria, New York with her husband, Gary, and daughter, Tessa. Tessa was diagnosed with Glut1 Deficiency in 2010 at the age of 9. Gary and April had their first “Fun Raiser” in support of the G1D Foundation within 3 months of Tessa’s diagnosis and have followed that with five more successful events. April became a member of the Fundraising Committee in 2013 and is very enthusiastic about continuing to support the Foundation’s mission of awareness, education and research.