Join the Family Network


Discover a global community of families who understand the unique challenges of this rare disease and are on a collective mission to find a cure.

Find a community that understands you.

The Family Network is the place to get your questions answered, meet other people on the same journey, and find people who understand, can support you, and give you hope! Join today so you can...

Connect virtually with other families.

Build relationships, learn strategies, and share resources on our Glut1 Deficiency Gatherings for parents, children, and adults with Glut1 Deficiency. We also host a meeting for all ages in Spanish.

Join our community forum.

Share resources, ask questions, and find the support you need on our safe, secure private messaging forum for families - Glut1 Community Connect.

Get discounts on our conferences.

Receive early registration perks and special network discounts for our biennial conferences where you can meet, share, and learn in person.

You’ll also...
  • Receive a welcome packet in the mail
  • Be the first to know about the latest research
  • Stay in the loop on community updates
  • Be invited to participate in research studies
  • Help us better understand Glut1 Deficiency

Join the Glut1 Deficiency Foundation Family Network

There are no fees or costs associated with joining and your information is safe and protected.