Parent and Caregiver Glut1 Gathering
ZoomJoin us to hear updates from Dr. Juan Pascual on his move to Weill Cornell and the Team Science grant to study Glut1 Deficiency
Winter Research Roundtable
ZoomPlease join us as we welcome Dr. Hudson Freeze and Dr. Matthew Gentry to talk about new discoveries in Glut1 Deficiency and how that may lead to deeper understanding and deeper connections to other diseases, such as Congenital Disorders of Glycosylation (CDG) and Glycogen Storage Diseases (GSD).
Comunidad Hispana Glut1 Gathering
ZoomJoin Sandra Ojeda and Chantal Sanchez to meet, share, and learn with the Spanish-speaking Glut1 Deficiency community. Come with topics and questions and find and give support.
Super Heroes Glut1 Gathering
ZoomJoin Dana Pottschmidt and tweens and teens with Glut1 Deficiency for a mini skill-building session followed by social time and fun!
Overcomers Glut1 Gathering
ZoomJoin and Dana Pottschmidt and adults with Glut1 Deficiency for a mini skill-building lesson and social time.
Parent and Caregiver Glut1 Gathering
ZoomJoin us to meet, share, and learn from others on this rare disease journey. We will use this time for a chance to socialize, ask questions, and find and give support.
Comunidad Hispana Glut1 Gathering
ZoomJoin Sandra Ojeda and Chantal Sanchez to meet, share, and learn with the Spanish-speaking Glut1 Deficiency community. Come with topics and questions and find and give support.
Super Heroes Glut1 Gathering
ZoomJoin Dana Pottschmidt and tweens and teens with Glut1 Deficiency for a mini skill-building session followed by social time and fun!
Overcomers Glut1 Gathering
ZoomJoin and Dana Pottschmidt and adults with Glut1 Deficiency for a mini skill-building lesson and social time.
Parent and Caregiver Glut1 Gathering
ZoomJoin us to meet, share, and learn from others on this rare disease journey. We will use this time for a chance to socialize, ask questions, and find and give support.
Super Heroes Glut1 Gathering
ZoomJoin Dana Pottschmidt and tweens and teens with Glut1 Deficiency for a mini skill-building session followed by social time and fun!
Overcomers Glut1 Gathering
ZoomJoin and Dana Pottschmidt and adults with Glut1 Deficiency for a mini skill-building lesson and social time.
Comunidad Hispana Glut1 Gathering
ZoomJoin Sandra Ojeda and Chantal Sanchez to meet, share, and learn with the Spanish-speaking Glut1 Deficiency community. Guest speaker is Dr. Ignacio Málaga, clinician and Glut1 Deficiency expert from Oviedo, Spain.
Parent and Caregiver Glut1 Gathering
ZoomWe are pleased to be welcoming Nick Wallace with Wallace Financial, who will be joining us at our April parent/caregiver Glut1 Gathering. Nick is a financial advisor with special accreditation from the Chartered Special Needs Consultant Program and has personal experiences in this area as well. He’ll be talking with us about planning for the…