Glut1 Deficiency Foundation
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 The G1DF has been receiving some questions around the growing concern over the COVID-19 pandemic and whether Glut1 Deficiency patients are at an increased risk. We understand this is a time of uncertainty and alarm. While there are no special or unique recommendations specific to our disease, the CDC (Centers for Disease Control and Prevention) has cautioned that certain underlying medical conditions, such as metabolic disorders and neurological conditions like Glut1 Deficiency, may make certain people more vulnerable to more serious effects.

Experts from our Medical Advisory Board have reinforced the importance of everyday precautions to help prevent illness and spread:
  • Avoid contact with people who are sick.
  • Cover your cough.
  • Practice social distancing.
  • Avoid touching your face, nose, eyes, etc.
  • Wash your hands often with soap and water for at least 20 seconds, especially after blowing your nose, coughing, or sneezing, or having been in a public place.
  • If soap and water are not available, use a hand sanitizer that contains at least 60% alcohol.
  • Clean and disinfect your home to remove germs: practice routine cleaning of frequently touched surfaces.
  • To the extent possible, avoid touching high-touch surfaces in public places – elevator buttons, door handles, handrails, handshaking with people, etc. 
  • Avoid groups/crowds.
  • Avoid all non-essential travel.
  • ​Protect the most vulnerable people, including elderly and those with existing medical conditions.

We encourage families to closely monitor information coming from trusted sources at the international, national, state, and local levels and to follow all the recommended guidelines and precautions for your location.  As always, please contact your healthcare provider if you have questions or concerns.

Glut1 Deficiency and COVID-19
Frequently Asked Questions with
​Dr. Juan Pascual

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Updated Information:
Centers for Disease Control and Prevention
World Health Organization
FDA
NIH


Online Webinars and Resources:
Matthew's Friends:  Tips on Managing a Medical Ketogenic Diet During the Coronavirus Pandemic
Matthew's Friends:  Hospital Guidance for Those on Ketogenic Therapy
The Charlie Foundation:  A Well-Stocked Keto Pantry
DEE-P Connections (Developmental Epilepsy Encephalopathies):  Extensive COVID-19 Resources 

Epilepsy Foundation:   Resources    Webinar
CURE (Citizens United for Research in Epilepsy):  Webinar
Metabolic Support UK:    Webinar   Slides
Global Genes:  COVID-19 Resources
​National Organization for Rare Disorders (NORD) Information   Webinar Summary
Rare New England:  COVID-19 Comprehensive Resources
American Psychiatric Association:  Mental Health and Well-Being Resources for COVID-19
Child Neurology Foundation:  Back to School

​

We send our very best wishes to the entire global community during this difficult time.

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Covid-19 Impact Survey

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Glut1 Deficiency Foundation
PO Box 737 
Owingsville, KY 40360    
​info@G1DFoundation.org
​
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​​Resources and information on this website are not intended as medical care or advice.
​​Please consult with your healthcare provider.
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Copyright © 2021 Glut1 Deficiency Foundation
  • Home
  • About Glut1 Deficiency
    • What is Glut1 Deficiency?
    • Key Terms in Glut1 Deficiency
    • About the Ketogenic Diet
    • Newly Diagnosed
    • Research >
      • Research News >
        • Research Grant Program >
          • Research Grant Award Recipients
      • Recent Publications
      • Patient Registry
    • Resources >
      • Cognition and Learning
      • Videos
      • Resource List
      • Family Recommended Specialists
      • Patient Stories >
        • Stories >
          • Emily
          • Bobby
          • Lilly
          • Allison
          • Katie
          • Tessa
          • Justin
          • Whitney
          • Ryan
          • Erik
          • Pattygrace
          • Chris
          • Sam
          • Collette
          • Phil
          • Joshua
          • DeAndre
          • Matt
          • Jayden
          • Brittany
          • Macie
          • Braden
          • Dalton
          • Jordan
          • Joelle
          • Sabrina
          • Thomas
          • Haley
          • Reed
          • Ben
          • Parys
          • Ronnie-Louise
          • Colin
          • Nathan
          • Lee
          • Dominic
          • Raina
          • Dylan
          • Brayden
          • Elli
          • Jacob
          • Rian
          • Hailey
          • Olivia
          • Addie
          • Drake
        • Share Your Story
      • Materiales en Español
    • Brochures
  • About G1DF
    • About the Foundation
    • Leadership Team
    • Medical Advisory Board
    • Scientific Advisory Board
    • Educational Events and Exhibits
    • Ways to Help
  • News
    • COVID-19
    • CZI Rare As One
    • Foundation Newsletters >
      • Fall 2020
      • Summer 2020
      • Spring 2020
      • Winter 2020
      • Fall 2019
      • Summer 2019
      • Spring 2019
      • Winter 2019
      • Fall 2018
      • Summer 2018
      • Spring 2018
      • Winter 2018
      • Fall 2017
      • Summer 2017
      • Spring 2017
      • Winter 2017
  • Conferences and Events
    • Conferences
    • 2021 Conference - San Diego
    • Glut1 Gatherings on Zoom
  • Get Involved
    • Family and Professional Networks
    • Volunteer Network
    • UTSW Surveys
    • Sign Up for Our Mailing List
    • Ways to Give
    • Shop to Support
    • Donate
    • Love Some1 with Glut1 >
      • 2021 Love Some1 video
      • 2021 Love Some1 with Glut1
    • Million Dollar Bike Ride
    • Fundraising >
      • Fundraising Help
      • Host a Fundraiser
  • Donate