Glut1 Deficiency Foundation
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Medical Advisory Board

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Mackenzie C. Cervenka  MD
Associate Professor of Neurology
Medical Director, Epilepsy Monitoring Unit
Medical Director, Adult Epilepsy Diet Center
Department of Neurology, Meyer 2-147
Johns Hopkins Hospital
600 North Wolfe Street
Baltimore, Maryland  21287
Tel: 443-287-0423      Email:  mcerven1@jhmi.edu
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Darryl C. De Vivo  MD
Founding Director of the Colleen Giblin Research
Laboratories for Pediatric Neurology
The Neurological Institute of New York
Columbia University Medical Center
710 West 168th Street, Suite 201
New York, New York  10032-3784
Tel: 212-305-5244     Email: dcd1@columbia.edu
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Kristin Engelstad  MS CGC
Genetic Counselor and Clinical Coordinator
Department of Neurology
Columbia University Medical Center
NI 2nd Floor
710 W. 168th St
New York City, New York  10032
Tel:  212-305-6834   Email: ke4@columbia.edu
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Prof. Dr. Jörg Klepper
Children’s Hospital Aschaffenburg
Klinik für Kinder und Jugendmedizin
Am Hasenkopf; D-63739
Aschaffenburg, Germany
Tel: 49-6021-32-3601
Email: joerg.klepper@klinikum-aschaffenburg.de
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Eric H. W. Kossoff   MD
Associate Professor, Neurology and Pediatrics
Medical Director, Johns Hopkins Ketogenic Diet Center
Suite 2158 – 200 North Wolfe Street
Johns Hopkins Hospital
Baltimore, Maryland 21287
Tel: 410-955-4259    Email: ekossoff@jhmi.edu
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Juan Pascual   MD PhD
Director and Principal Investigator
Rare Brain Disorders Program
UT Southwestern Medical Center
5323 Harry Hines Boulevard
Dallas, Texas  75390-8813
Tel: 214-645-8300    Email:  juan.pascual@utsouthwestern.edu

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Glut1 Deficiency Foundation
PO Box 737 
Owingsville, KY 40360    
​info@G1DFoundation.org

​​Resources and information on this website are not intended as medical care or advice.
​​Please consult with your healthcare provider.
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Copyright © 2018 Glut1 Deficiency Foundation
  • Home
  • About Glut1 Deficiency
    • What is Glut1 Deficiency?
    • Key Terms in Glut1 Deficiency
    • About the Ketogenic Diet
    • Brochures
    • Professional Guide
    • Newly Diagnosed
    • Educational Video Project
    • Resources
    • Cognition and Learning
    • Related Links
    • Research News
    • Recent Publications
    • Patient Registry
    • Videos
    • Materiales en Español
    • Family Recommended Specialists >
      • Recommend a Specialist
  • About G1DF
    • About the Foundation
    • Leadership Team
    • Medical Advisory Board
    • Scientific Advisory Board
    • Educational Events and Exhibits
    • Ways to Help
    • Research Grant Program
  • News
    • Recent News
    • Foundation Newsletters >
      • Winter 2018
      • Fall 2017
      • Summer 2017
      • Spring 2017
      • Winter 2017
  • Conferences
    • Conferences
    • 2019 Conference - Washington, DC
    • Past Conferences >
      • 2017 Conference - Nashville
      • 2015 conference – Orlando
      • 2013 Conference – Houston >
        • 2013 Houston Conference Webcasts
      • 2012 Conference – Indianapolis
      • Conference Summary Reports
  • Stories
    • Stories >
      • Emily
      • Bobby
      • Lilly
      • Allison
      • Katie
      • Tessa
      • Justin
      • Whitney
      • Ryan
      • Erik
      • Pattygrace
      • Chris
      • Sam
      • Collette
      • Phil
      • Joshua
      • DeAndre
      • Matt
      • Jayden
      • Brittany
      • Macie
      • Braden
      • Dalton
      • Jordan
      • Joelle
      • Sabrina
      • Thomas
      • Haley
      • Reed
      • Ben
      • Parys
      • Ronnie-Louise
      • Colin
      • Nathan
      • Lee
      • Dominic
      • Raina
      • Dylan
      • Brayden
      • Elli
      • Jacob
      • Rian
      • Hailey
      • Olivia
      • Addie
      • Drake
    • Share Your Story
  • Get Involved
    • Ways to Give
    • Shop to Support
    • Donate
    • Sign Up for Our Mailing List
    • Love Some1 with Glut1 >
      • 2018 Love Some1
    • Fundraising >
      • Fundraising Help
  • Contact Us
✕