Planned giving

Help shape the future for the Glut1 Deficiency community.


The Glut1 Deficiency Foundation is working hard to bring help and hope today and build a brighter future tomorrow for patients and families who live with the many challenges of this rare disease. Through our mission of awareness, education, advocacy, and research, we are strengthening, supporting, and empowering the community and accelerating progress for treatments and cures.

You can be part of that brighter future by giving today or planning a gift to create a legacy of lasting impact on and an investment in the work of the Glut1 Deficiency Foundation for generations to come.

Planned giving might include:

  • a bequest in your will or living trust
  • a beneficiary designation on a life insurance policy, 401(k) plan, or IRA
  • an endowment
  • in honor of or in memoriam donation requests

Should you choose to name the Glut1 Deficiency Foundation in your will or other estate planning, the statement below will be helpful. Please contact us ([email protected]) to let us know about any plans so that we can acknowledge the honor and gift you are giving and express our gratitude, even if you'd like to remain anonymous to the public.

The Glut1 Deficiency Foundation is a 501(c)(3) nonprofit organization incorporated in the state of Indiana with the mailing address of PO Box 737, Owingsville, Kentucky 40360. Tax identification number:  45-2190535