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2028 GLUT1 DEFICIENCY

Scientific and Family Summit

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We are delighted to share that the next GLUT1 Deficiency Summit - our 13th community convening - will be held in July 2028 along the sandy beaches of Gulf Shores, Alabama.

We look forward to welcoming the community to this beautiful, family-friendly spot for another incredible opportunity to meet, share, and learn together.

Summit Goals:

  • improve care and outcomes for individuals living with GLUT1 Deficiency
  • strengthen and empower families through connection, education, and community
  • elevate the patient and caregiver voice to help guide research and priorities
  • share the latest scientific discoveries, clinical advances, and emerging therapies
  • foster collaboration across disciplines, institutions, and sectors
  • identify unmet needs, critical gaps, and opportunities for progress
  • inspire and engage the next generation of researchers, clinicians, and advocates
  • unite all stakeholders around a shared vision for a brighter future

Summit Details:

For 2028, we're embracing the relaxed spirit and welcoming charm of the Gulf Coast. Inspired by the laid-back atmosphere of beach communities like Gulf Shores, the 2028 Summit will feature a simplified schedule with more opportunities to connect, recharge, and enjoy time together.

While scientific and educational content will remain at the heart of the meeting, we'll create more space for conversations, spontaneous connections, family time, and simply enjoying the beautiful surroundings. Some of the most meaningful moments happen between sessions, and we're designing this Summit with those moments in mind.

Come ready to learn, collaborate, build friendships, and make memories together.

  • Tuesday, July 11, 2028:  evening hotel social and registration
  • Wednesday, July 12, 2028:  clinical sessions
  • Thursday, July 13, 2028:  family and scientific sessions

Venue and Guest Room Info:

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The Embassy Suites Gulf Shores will be the venue for both guest accommodations and the meeting.

  • new hotel opened in October 2025
  • steps from Gulf Shores Beach and city park
  • all guest rooms are suites - mini-fridge, microwave, sink, sitting area with sofa bed
  • free hot made-to-order breakfast for hotel guests with keto-friendly options
  • conference room rate starting at $289 per night
  • discounted resort fee of $30 - includes two beach chairs and umbrella rental, beach cooler valet including ice, free wi-fi, bike rentals, and daily resort activities
  • large outdoor pool
  • beach is accessibility-friendly
  • three restaurants on property plus a full service Starbucks
  • walking distance to restaurants, shops, groceries

Visitor Information:

Things to do on Alabama's Beaches

Airports:

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