Puberty Experiences Survey
In partnership with Dr. Eric Kossoff at Johns Hopkins Hospital, the Glut1 Deficiency Foundation is conducting a puberty survey with the goal of collecting information about puberty experiences and the ketogenic diet in the Glut1 Deficiency community.
This is the first of its kind research effort focused solely on puberty experiences for people with Glut1 Deficiency and is an important survey to find out if puberty is a problem (or maybe not?) for children/teens with Glut1 Deficiency.
Dr. Kossoff and Glenna Steele (Glut1 Deficiency Foundation) have been discussing this topic for years and it is a common concern for parents of children with Glut1 Deficiency about to reach puberty. Will seizures get worse? What about ketosis?
This research study is a way to learn information about puberty and Glut1 Deficiency and help others, and your insights will be important.
Please take this brief 7 to 10 minute survey by February 1st to make sure your experiences are included – thank you sincerely for your help!
