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All Events Conferences Fundraisers Glut1 Gatherings Research Roundtable

    • Parent and Caregiver Glut1 Gathering

    Zoom

    Join us to meet, share, and learn from others on this rare disease journey. We will use this time for a chance to socialize, ask questions, and find and give support.

    • Biorepository Roadshow

    KDVS Conference Orlando, Florida

    COMBINEDBrain has created a Biorepository Roadshow to allow participating organizations to collaborate during our individual family conferences to provide opportunities for any of the COMBINEDBrain rare diseases represented to invite families to come do sample donations. The Glut1 Deficiency Foundation is participating, and if you live near one of these member conference locations, you can…

    Free

    Summer Research Roundtable

    Zoom

    Topics for this edition of our quarterly Research Roundtables will focus on organoid modeling with Dr. Caroline Pearson and a preview of the upcoming Global Keto Symposium with Dr. Jong Rho.

    Comunidad Hispana Glut1 Gathering

    Zoom

    Join Sandra Ojeda and Chantal Sanchez to meet, share, and learn with the Spanish-speaking Glut1 Deficiency community. Come with topics and questions and find and give support.

    Super Heroes Glut1 Gathering

    Zoom

    Join Dana Pottschmidt and tweens and teens with Glut1 Deficiency for a mini skill-building session followed by social time and fun!

    Overcomers Glut1 Gathering

    Zoom

    Join and Dana Pottschmidt and adults with Glut1 Deficiency for a mini skill-building lesson and social time.

    • Parent and Caregiver Glut1 Gathering

    Zoom

    Join us to meet, share, and learn from others on this rare disease journey. We will use this time for a chance to socialize, ask questions, and find and give support.

    • Research Ready Indianapolis

    Embassy Suites Noblesville, Indiana 13700 Conference Center Drive South, Noblesville, IN, United States

    The Glut1 Deficiency Foundation is pleased to offer the new Research Ready Series, a special project to build a strong, patient-centered research foundation and increase research literacy in our community.

    Comunidad Hispana Glut1 Gathering

    Zoom

    Join Sandra Ojeda and Chantal Sanchez to meet, share, and learn with the Spanish-speaking Glut1 Deficiency community. Come with topics and questions and find and give support.

    Super Heroes Glut1 Gathering

    Zoom

    Join Dana Pottschmidt and tweens and teens with Glut1 Deficiency for a mini skill-building session followed by social time and fun!

    Overcomers Glut1 Gathering

    Zoom

    Join and Dana Pottschmidt and adults with Glut1 Deficiency for a mini skill-building lesson and social time.