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Glut1 Glimpses:  The Blog

Find insights and news that matters to the Glut1 Deficiency community, including events, family features, research snapshots, and special announcements. Find these Glut1 Glimpses below.

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Our monthly newsletters keep you in the know about what's happening at the G1DF and in the community as we work hard to bring help and hope to patients and families.

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The blog

Glut1 Glimpses

Dr. Darryl De Vivo – Professor Emeritus

A special research symposium and reception was held on Thursday, September 21st in honor of Dr. Darryl De Vivo, now Professor Emeritus at Columbia University Irving Medical...
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Matrix Natural History Study: Snapshots at Year 1

Hello everyone and welcome to Science with Sandra! This time, I would like to share with you the preliminary results of the MATRIX Natural History Study that...
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Research Roundtable Summary – Speech and Language

I would like to highlight our most recent research roundtable which took place on April 25th. The topic of this meeting was speech and communication challenges for Glut1 Deficiency patients...
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Triheptanoin in Glucose Transporter Type 1 Deficiency

Hello Glut1 community! I am so happy to share with you the latest publication by Dr. Juan Pascual and his team at UT Southwestern. The title of...
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Winter Research Roundtable: Adult Focus

Hello Glut1 Community! In this issue of Science with Sandra, I want to share about the Glut1 Deficiency Foundation Roundtable winter edition, which took place on January...
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