2022

Glut1 Deficiency Foundation Conference

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We met, we shared, we learned! It was truly a milestone meeting, and we are so thankful for everyone who helped make it happen!  This gathering provided the opportunity for all to build relationships, foster collaborations, and create community while focusing on how to better meet the needs of patients and families.

The goals of our gathering:

  • share key research updates
  • identify critical gaps in understanding and strategies to address them
  • foster connections and collaborations across related research areas
  • include and engage all stakeholder groups to drive research progress
  • attract and inspire new researchers and disease specialists
  • improve patient care
  • support, connect, and empower the patient and family community
  • give patients a voice in the research process
SD 2022 low res

The Scientific and Family Conference recordings and resources are ready and available. So much great content was shared and so many good things are happening.

​If you missed it, you can register to receive access to these recordings and resources. Registration fee is $49 to help cover the cost of the recordings, but if cost is prohibitive, you can complete a fee waiver application here.

Program Book and Agenda
Recordings and Resources registration