Glut1 Gatherings

Our Zoom program provides opportunities for members of our community to meet up with others no matter where we live! These gatherings will provide us opportunities to meet, share, learn, and support one another.

​We have a monthly group for parents and caregivers as a chance to socialize, ask questions, and find and give support. Once a quarter we will feature a topic and guest speaker.

A group for the Hispanic Community (conducted in Spanish) follows the same routine as the parent/caregiver group with topics once a quarter and the rest of the gatherings as open opportunity to visit, ask questions, and give and get support.

The Overcomers (for adults with Glut1 Deficiency) meets monthly hosted by Dana Pottschmidt. She's a licensed social worker and behavioral consultant and works with people with developmental disabilities to increase independent living and social skills. Overcomers gatherings will be a mix of skill building, support, and social time.

Dana also hosts a monthly group for tweens and younger teens with Glut1 Deficiency - the Glut1 Super Heroes. It will include some short structured activities along with time for socializing, support, and building friendships.

The Glut1 Pals (for children with Glut1 Deficiency) meets monthly for social time and special activities with Glut1 moms Maddison Hall, Maria Rebbecchi, and Erin Meisner.

Pre-registrations will still be required, and as an extra layer of security, you'll need to be part of our Family Network in order to participate.

Meeting announcements and registration links will be shared through the Family Network, and any Glut1 Deficiency patient or family member from any location is welcomed and encouraged to join.