Glut1 Deficiency Foundation
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The Glut1 Deficiency Foundation is creating a network of patients, families, and professionals who have a connection to the Glut1 Deficiency community. The purpose of these networks is to better connect, educate, support, and empower our community as we work together for better understanding, better treatments, and a better quality of life for all people who have Glut1 Deficiency and for those who love and care for them.

The Family Network is open to any patient or family member, while the Professional Network has been created for researchers, clinicians, and other healthcare providers.  The Glut1 Deficiency Foundation will use these networks to communicate important udpates, conduct surveys, gather feedback, and continue to look for a variety of other ways to collaboratively engage stakeholders in our efforts to better serve our community and drive research progress.  We welcome and encourage global participation. The G1DF respects and values your privacy and will not share your personal information.

Family Network membership will help us with these important goals:
  • Have a more accurate count of how many people are diagnosed and affected
  • Learn the range of patient ages and have a more accurate idea of how many are children and how many are adults
  • Know where people with Glut1 Deficiency live to help us choose locations for our biennial conferences
  • Know where there are pockets of families to help plan regional educational and support efforts
  • Better connect with international Glut1 Deficiency families and their patient advocacy organizations
  • Better connect interested families and patients to others based on similar locations, ages, or centers of care
  • Better understand the diverse experiences, needs, and priorities in our community
  • Better organize and engage our community in our mission efforts
  • Work more collaboratively to bring help and hope to our patients and their loved ones

Professional Network membership will help us answer these important questions:
  • Who and where are the healthcare professionals treating Glut1 Deficiency patients?
  • What services are they providing?
  • How many patients do they have in their care?
  • Who is doing research related to Glut1 Deficiency?
  • What kind of research is being done?
  • Where is this research happening?
  • How can we take what is being learned in research and translate it to better patient care?
  • How can we take what is being learned in clinic and translate it to better and more focused research?
  • How can we better connect these professionals?
  • What are their needs and priorities?
  • How can we help improve, coordinate, and support their work?​

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Network members will also be eligible for early access to event registrations and special members-only discounts to our conferences and our online store.

​There are no fees or costs associated with being a member of either the Family Network or the Professional Network.

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You may already be on our mailing list, but the Family Network and the Professional Network are new initiatives and will require a separate registration.  Please sign up today and join the G1DF as we work to bring help and hope to the Glut1 Deficiency community!

Global participation is welcomed and encouraged!

Join the Family Network
Join the Professional Network
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Join OUr Networks

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Glut1 Deficiency Foundation
PO Box 737 
Owingsville, KY 40360    
​info@G1DFoundation.org

​​Resources and information on this website are not intended as medical care or advice.
​​Please consult with your healthcare provider.
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Copyright © 2019 Glut1 Deficiency Foundation
  • Home
  • About Glut1 Deficiency
    • What is Glut1 Deficiency?
    • Key Terms in Glut1 Deficiency
    • About the Ketogenic Diet
    • Brochures
    • Professional Guide
    • Resources
    • Newly Diagnosed
    • Educational Video Project
    • Cognition and Learning
    • Research News
    • Recent Publications
    • Patient Registry
    • Patient Stories >
      • Stories >
        • Emily
        • Bobby
        • Lilly
        • Allison
        • Katie
        • Tessa
        • Justin
        • Whitney
        • Ryan
        • Erik
        • Pattygrace
        • Chris
        • Sam
        • Collette
        • Phil
        • Joshua
        • DeAndre
        • Matt
        • Jayden
        • Brittany
        • Macie
        • Braden
        • Dalton
        • Jordan
        • Joelle
        • Sabrina
        • Thomas
        • Haley
        • Reed
        • Ben
        • Parys
        • Ronnie-Louise
        • Colin
        • Nathan
        • Lee
        • Dominic
        • Raina
        • Dylan
        • Brayden
        • Elli
        • Jacob
        • Rian
        • Hailey
        • Olivia
        • Addie
        • Drake
      • Share Your Story
    • Videos
    • Materiales en Español
    • Family Recommended Specialists >
      • Recommend a Specialist
  • About G1DF
    • About the Foundation
    • Leadership Team
    • Medical Advisory Board
    • Scientific Advisory Board
    • Educational Events and Exhibits
    • Ways to Help
    • Research Grant Program >
      • Research Grant Award Recipients
  • News
    • Recent News
    • Foundation Newsletters >
      • Fall 2019
      • Summer 2019
      • Spring 2019
      • Winter 2019
      • Fall 2018
      • Summer 2018
      • Spring 2018
      • Winter 2018
      • Fall 2017
      • Summer 2017
      • Spring 2017
      • Winter 2017
  • Conferences
    • Conferences
    • 2021 Conference - San Diego
    • 2019 Conference - Washington, DC
    • Past Conferences >
      • 2017 Conference - Nashville
      • 2015 conference – Orlando
      • 2013 Conference – Houston >
        • 2013 Houston Conference Webcasts
      • 2012 Conference – Indianapolis
      • Conference Summary Reports
  • Get Involved
    • Ways to Give
    • Donate
    • Family and Professional Networks
    • Volunteer Network
    • Sign Up for Our Mailing List
    • Shop to Support
    • Love Some1 with Glut1 >
      • 2019 Love Some1 with Glut1
    • Fundraising >
      • Fundraising Help
      • Host a Fundraiser
  • Donate