Extra Support Services

GLUT1 Deficiency is a rare condition that affects how glucose gets into the brain, which can lead to a wide range of neurological symptoms that impact each individual differently.

Caring for someone with GLUT1 Deficiency often means juggling many needs at once. Along the way, families may find that additional support services can help fill gaps in care or provide extra guidance during certain stages of life. To help, the G1DF is sharing a list of trusted consultants who understand the day-to-day realities of GLUT1 Deficiency and are available to support families as needed on an individual basis.

school support

School can feel especially complicated for children with GLUT1 Deficiency and their families. Many parents navigate special education services, IEPs, 504 plans, medical and dietary accommodations, and ongoing communication with schools.

Having the right guidance can make a big difference. Educational consultants can help families understand their options, advocate for appropriate supports, and work with schools to create learning environments where children can grow academically and socially.

SPECIAL EDUCATION CONSULTANT: Becky Olson, EdD

Dr. Becky Olson has been in public education for 24 years. She has taught in several Special Education classrooms, served as a Master Teacher, IEP Facilitator, and she is currently a Transition Coordinator. Becky is active in her community serving on several boards, coordinating Special Olympics, and collaborating with the “Mom Squad” on building opportunities for their special needs children. Becky and her husband, Michael, of 23 years, have a 20 year old daughter with Glut1 Deficiency Syndrome. Becky received her master’s degree from Western Governors University in Education and Technology and her doctorate from Liberty University in Community Care and Counseling: Traumatology. She is a huge advocate for inclusion and that all individuals should be allowed the same opportunities regardless of their abilities.

social and behavior support

Living with GLUT1 Deficiency can present unique social and behavioral challenges. Specialized support services can help individuals build independence skills, navigate social interactions, and address behavioral concerns in ways that are informed by the underlying neurological aspects of the condition.

These services aim to strengthen quality of life and help individuals and families build a brighter, more independent future.

SOCIAL AND BEHAVIOR CONSULTANT: Dana Pottschmidt, MSW

Dana Pottschmidt earned a Bachelors of Social Work from the University of Indianapolis and her Masters of Social Work from Indiana University. She has served various roles within direct support, employment services, and behavioral supports for those with intellectual and developmental disabilities. Dana is Registered Behavioral Consultant in the state of Indiana. She is currently working as a Behavioral Support Specialist at Opportunities for Positive Growth, Inc. where she works to increase independent living and social skills for those she supports. Dana also is the new part-time Program Director for the G1DF and is happy to provide resources and ideas in this role, but is also available for more in-depth consultations if families are interested in those services.

keto diet support

The ketogenic diet is the standard treatment for GLUT1 Deficiency, but access to experienced ketogenic care isn’t always easy. Some families may not live near a specialized clinic or may need extra guidance along the way.

G1DF connects families with experienced, vetted dietitians who understand GLUT1 Deficiency and offer virtual support. This may include a one-time consultation or ongoing help, depending on what works best for your family.

KETOGENIC DIETITIAN SERVICES:

Advanced Ketogenic Therapies
Sarah Metzger Nutrition
Vanessa Aldaz Nutrition

additional resources

Parent Partner Peer Support Project
Resource Collection