Glut1 Deficiency Summit

Registration

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We're thrilled to launch registration for the 2024 Glut1 Deficiency Summit! We are thankful for your interest in attending and have much to be excited about and look forward to during our time together in Dallas to meet, share, and learn.

There are options for both in-person and virtual participation to help make the Summit more accessible to more stakeholders.

​Registration will close on June 12th and there will be no on-site registration available.

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registration options:

Daily registration options are available to help attendees customize their Summit experience, and all attendees are welcome to register and attend any sessions of interest.

Please see the daily overview below and view the preliminary agenda to see more specific details about speakers, topics, and activities for each day.

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Wednesday, June 26
Scientific Sessions Day 1:  12:00-8:00 PM
lunch and poster session included

Thursday, June 27
Scientific Sessions Day 2:  8:00-5:00 PM
Evening Social:  7:00-9:00 PM
lunch and evening social included

Friday, June 28
Clinical Sessions 8:00 AM to 5:00 PM
Evening Social:  7:00-9:00 PM
lunch and evening social included

Saturday, June 29
Family Sessions 8:00 AM to 5:00 PM
Evening Social:  7:00-9:00 PM
lunch and evening social included

registration pricing:

patients
anyone diagnosed with Glut1 Deficiency of any age
free daily in person

parent or caregiver
parents, caregivers, and adult family members of people diagnosed with Glut1 Deficiency
$99 daily in person | $99 for full virtual Summit

siblings
siblings of people diagnosed with Glut1 Deficiency
$59 daily in person

professionals
medical field professionals and academic researchers
$149 daily in person | $149 for full virtual Summit

students or post docs
students and post docs at an academic institution
$109 daily | $109 for full virtual Summit

industry
representatives of for-profit companies
$249 daily | $349 for full virtual Summit

child care providers
those coming to provide supervision - no access to meals or presentations
free daily in person

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Research Ready Series:
We'll be hosting the Dallas edition of our Research Ready Series in conjunction with the Glut1 Deficiency Summit. Learn more about this series and how you can participate here.

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Refund Policy:
Cancellation requests received on or before June 12th are refundable subject to a $25 fee to cover administrative and processing costs. There will be no refunds for cancellation requests after June 12th with the exception of attendees who are unable to attend due to illness or who have an emergency situation, which will be reviewed on a case by case basis. Refunds will not be provided for no-shows.

Cancellation and refund requests must be received in writing via email to [email protected].

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Conference Assistance:
The Glut1 Deficiency Foundation helps contribute a substantial amount of support for conference expenses that we do not pass along to attendees with the hopes that more families will be able to attend. We also try hard to make the experience a very valuable one for those who come so that they feel it has been time and money well spent. However, we do know that it is still a big investment and the expenses involved can and do create barriers.

To help overcome some of those barriers, we've put together some resources that will hopefully help more families be able to find avenues of support that make attendance possible and easier. There are programs and opportunities out there, but knowing where to look can be hard.

We will also be offering a virtual attendance option for those who may not be able to attend the conference in person for any number of reasons.

  • Some states have special programs through their Councils on Developmental Disabilities that help cover some costs associated with going to educational conferences. Programs and funding varies, but it is worth exploring options.  Each state is mandated to have its own developmental disabilities council, so check to see if there are funds available.  Find more information and links to each state's agency here.  We suggest starting the process early, and please let us know if you apply for assistance and need any documentation to support the application. 
  • If you are on a Medicaid Waiver program, there is often funding available for educational events for caregivers and family members. Please check with your waiver coordinator for more details.
  • The ARC of the United States also offers conference assistance through some local chapter programs.
  • Check with your local United Way, Kiwanis, Rotary Club, and Lions Club chapters about family support programs.
  • There are nonprofits who offer free medical flights that may also offer assistance for families to attend medical conferences. Typically these are for travel for medical appointments, but conferences for rare disease communities provide an opportunity to learn from other families and have the experts at your fingertips, so it is a unique form of medical care: PALS and Angel Flights
  • Ask family and friends or your place of worship to help support or sponsor your efforts to attend the conference.​
  • Even if you aren’t able to find a grant to assist you, some of the expenses you incur in attending a medical conference may be  tax deductible if you itemize your medical expenses on your federal tax return.  See “medical conferences” here in this IRS document for current rules and guidelines. 
  • The National Organization for Rare Disorders (NORD) offers a Rare Disease Education Support Program which is designed to offer rare disease patients, their families and/or caregivers an opportunity to participate in educational programs and conferences that offer rare disease content. Visit NORD's website to learn more.
  • Uplifting Athletes has a Researcher Connection Program to assist with travel expenses for rare disease researchers and doctoral students with an interest in the rare disease field by providing funds and/or vouchers for qualified applicants to attend patient advocacy organization sponsored events. Learn more at the Uplifting Athletes website.
  • A limited number of registration scholarships are available for virtual attendance. Please find more details and complete and submit the scholarship application here.