Registration GLUT1 Deficiency Summit | GLUT1 Deficiency Foundation

Glut1 Deficiency Summit

Registration

We're thrilled to launch registration for the 2026 GLUT1 Deficiency Scientific and Family Summit! We are thankful for your interest in attending and have much to be excited about and look forward to during our time together in Asheville to meet, share, and learn.

Please review all of the information below before completing your registration, and please reach out to the G1DF if you have any questions.

Registration will close on June 15th and there will be no on-site registration available. The hotel discount also ends on June 15th.

April 17th Update: Currently at Capacity

We are incredibly grateful for the overwhelming response to the 2026 GLUT1 Deficiency Scientific and Family Summit in Asheville this July. The enthusiasm and excitement from this community mean so much, and we are honored by the strong interest in coming together again.

At this time, we have reached our current capacity of 380 attendees and general registration is now closed.

We know there may still be families and professionals hoping to attend. Because plans can sometimes change, we are maintaining a waitlist in the event space becomes available due to cancellations.

👉 Join the Summit Waitlist

Thank you again for your show of support and eagerness to meet, share, and learn with us. We can’t wait to be with you and welcome everyone to Asheville this summer.

registration pricing:

Registration Fees: March 16th through May 31st

person with GLUT1 Deficiency | $49
sibling | $149
parent, caregiver, and other family member | $249
student or post-doc | $249
professional clinician or researcher | $299
industry partner | $399
child care provider | free (see note below)

Late Registration Fees: June 1st through June 15th

person with GLUT1 Deficiency | $99
sibling | $199
parent, caregiver, and other family member | $299
student or post-doc | $299
professional clinician or researcher | $349
industry partner | $449
child care provider | free (see note below)

A note about registration and checkout fees:
To keep registration costs low, we use Givebutter, a free fundraising and registration platform for nonprofits. During checkout, Givebutter may automatically suggest and insert a tip amount to support their services (it does not go to the G1DF). This tip is entirely optional and can be changed to any amount - including $0 - before completing your registration or purchasing shirts.

A note about the child care provider registration option:
Child care providers with free registration will only have access to the activity room - no meals, socials, or presentations. Please register child care providers with a regular parent/caregiver registration option for full access to all conference activities.

registration includes:

Registration includes:
Access to all presentation sessions, all social events, the activity room, exhibits, attendee materials, and the following meals:

Day 1 | Monday: evening social meal

Day 2 | Tuesday: lunch

Day 3 | Wednesday: lunch and evening social meal

*Hotel guests have access to the free breakfast buffet provided by Embassy Suites, which includes keto-friendly options.

*Detailed information will be provided to registered attendees about menus, socials, and activities closer to the date.

*Child care providers with free registration will only have access to the activity room - no meals, socials, or presentations. Please register child care providers with a regular parent/caregiver registration option for full access.

refund policy:

Since the Summit involves significant advance planning and costs that we commit to ahead of time, our refund policy is as follows:

Cancellation requests received on or before June 15th are eligible for a refund, minus a $25 administrative fee to help cover processing costs.
After June 15th, we are unable to offer refunds, as many event-related expenses have already been finalized. We understand, however, that unexpected situations can arise. Requests due to illness or emergency circumstances will be reviewed on a case-by-case basis. Refunds cannot be provided for no-shows.
Cancellation and refund requests must be received in writing via email to [email protected].

capacity note:

Summit shirts:

processing fees:

photography and video:

The GLUT1 Deficiency Foundation may take photographs and videos during Conference events to share in Foundation communications and promotional materials. These materials may be used in print, online, and other formats, including the G1DF's website, emails, and social media channels.

By attending the Conference, you give permission for the G1DF to use images, video, audio, or likeness that may include you, without limitation, for educational, informational, and promotional purposes.

If you prefer not to be photographed or recorded, please let a member of the Foundation team know at registration, and we will do our best to accommodate your request.

personal information use:

Your personal information will be collected to manage your registration and participation in the Summit. This information may be shared with the G1DF staff and volunteers and with trusted vendors who help coordinate conference logistics.

Your information will not be shared for any other purpose, and the G1DF never sells your data.

If you have questions about how your information is used, or if you would like to request changes or removal of your information after the event, please contact the G1DF team.

code of conduct:

The GLUT1 Deficiency Foundation values the participation of every member of our community and are committed to creating a welcoming, supportive, and respectful environment for all. Our events bring together families, clinicians, researchers, and partners, and we want everyone to feel safe, included, and respected.

All attendees, speakers, volunteers, vendors, and staff are expected to conduct themselves with integrity, kindness, and professionalism throughout all programs and events. Harassment or discrimination of any kind will not be tolerated, including behavior based on gender, sexual orientation, disability, physical appearance, body size, race, religion, or any other personal characteristic. Inappropriate language, imagery, or behavior is not acceptable.

Please be mindful that our community includes people from diverse backgrounds and lived experiences. We ask everyone to communicate thoughtfully, treat others with respect, and help foster a positive, inclusive atmosphere.

All participants are expected to follow conference policies and any protocols required by G1DF, the venue, and applicable authorities. Attendees who do not comply with this Code of Conduct or conference protocols may be asked to leave the event, at G1DF’s discretion, and registration fees may be forfeited.

Summit Assistance:

The GLUT1 Deficiency Foundation helps provide a substantial amount of support for conference expenses that we do not pass along to attendees with the hopes that more families will be able to attend. We also try hard to make the experience a very valuable one for those who come so that they feel it has been time and money well spent. However, we do know that it is still a big investment and the expenses involved can and do create barriers.

To help overcome some of those barriers, we've put together some resources that will hopefully help more families be able to find avenues of support that make attendance possible and easier. There are programs and opportunities out there, but knowing where to look can be hard.

information for families:

Developmental Disabilities Councils:
State Developmental Disabilities (DD) Councils can be a resource for financial support for individuals with developmental disabilities and their families to attend advocacy and training conferences. Each state has a council, and many offer programs for this purpose. Find and Contact Your State's DD Council on the National Association of Councils on Developmental Disabilities (NACDD) website.
Medicad Waivers:
If you are on a Medicaid Waiver program, there is often funding available for educational events for caregivers and family members. Please check with your waiver coordinator for more details.
NORD:
The Rare Disease Education Support Program is designed to offer rare disease patients, their families and/or caregivers an opportunity to participate in educational programs and conferences that offer rare disease content. NORD’s program provides financial support for registration costs and limited assistance with associated travel and lodging costs for conference participation - learn more.
The Oracle Health Foundation provides pediatric grants that cover a wide variety of clinical, equipment, and travel and lodging costs related to children’s healthcare needs.
The ARC of the United States also offers conference assistance through some local chapter programs.
Health Savings Accounts (HSA):
Some expenses involved in attending the conference may be considered qualified medical expenses for use of HSA funds, specifically the registration fees and transportation costs. Please consult with your HSA provider for more details.
Tax Relief:
Some of the expenses you incur in attending a medical conference may be tax deductible if you itemize your medical expenses on your federal tax return. See “medical conferences” here in this IRS document for current rules and guidelines.

information for professionals:

Uplifting Athletes has a Researcher Connection Program to assist with travel expenses for rare disease researchers and doctoral students with an interest in the rare disease field so these individuals will be able to connect in person with the rare disease community, to foster collaboration, and communication.

Additionally, flash talk presenters will be eligible for travel stipends. Please see the application for these presentation slots.