Glut1 Deficiency Foundation
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Stories

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Thank you to all who have participated and shared your unique and inspiring journey in the world of Glut1 Deficiency. These stories provide solace to families and enlightenment to the medical community. Your help plays an important role in our efforts to raise awareness and spread education. 

We hope these stories bring smiles to your faces and add warmth to your hearts, for they are indeed glimpses of exceptional families and amazing children.


Find out how to add or update your story here - thank you!

Emily
Bobby
Lilly
Allison
Katie
Tessa
Justin
Whitney
Ryan
Erik
Pattygrace
Chris
Sam
Collette
Phil
Joshua
DeAndre
Matt
Jayden
Brittany
Macie
Braden
Dalton
Jordan
Joelle
Sabrina
Thomas
Haley
Reed
Ben
Parys
Ronnie-Louise
Colin
Nathan
Dominic
Lee
Raina
Dylan
Brayden
Elli
Jacob
Rian
Hailey
Olivia
Addie
Drake
Cleo

Join OUr Networks

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Glut1 Deficiency Foundation
PO Box 737 
Owingsville, KY 40360    
​info@G1DFoundation.org
​
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​​Resources and information on this website are not intended as medical care or advice.
​​Please consult with your healthcare provider.
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Copyright © 2021 Glut1 Deficiency Foundation
  • Home
  • About Glut1 Deficiency
    • What is Glut1 Deficiency?
    • Key Terms in Glut1 Deficiency
    • About the Ketogenic Diet
    • Newly Diagnosed
    • Research >
      • Research News >
        • Research Grant Program >
          • Research Grant Award Recipients
      • Recent Publications
      • Patient Registry
    • Resources >
      • Cognition and Learning
      • Videos
      • Resource List
      • Family Recommended Specialists
      • COVID-19
      • Patient Stories >
        • Stories
        • Share Your Story
      • Materiales en Español
    • Brochures
  • About G1DF
    • About the Foundation
    • Leadership Team
    • Medical Advisory Board
    • Scientific Advisory Board
    • Educational Events and Exhibits
    • Ways to Help
  • News
    • CZI Rare As One
    • Foundation Newsletters >
      • Winter 2021
      • Fall 2020
      • Summer 2020
      • Spring 2020
      • Winter 2020
      • Fall 2019
      • Summer 2019
      • Spring 2019
      • Winter 2019
      • Fall 2018
      • Summer 2018
      • Spring 2018
      • Winter 2018
      • Fall 2017
      • Summer 2017
      • Spring 2017
      • Winter 2017
  • Conferences and Events
    • Conferences
    • 2021 Scientific and Family Conferences
    • Glut1 Gatherings on Zoom
  • Get Involved
    • Family and Professional Networks
    • Volunteer Network
    • UTSW Surveys
    • Sign Up for Our Mailing List
    • Ways to Give
    • Shop to Support
    • Donate
    • Love Some1 with Glut1 >
      • 2021 Love Some1 with Glut1
    • Million Dollar Bike Ride
    • Fundraising >
      • Fundraising Help
      • Host a Fundraiser
  • Donate