Glut1 Deficiency Summit


We are already excited about our next biennial gathering of the entire stakeholder community at our Glut1 Deficiency Summit! We have special sessions planned to build relationships, foster collaborations, and create community while focusing on how to better meet the needs of patients and families.

The goals of our gathering:

  • improve patient care
  • support, connect, and empower the patient and family community
  • give patients a voice in the research process
  • share key research updates
  • identify critical gaps and strategies to address them
  • foster collaborations across related research areas
  • attract and inspire new researchers and disease specialists
  • engage all stakeholder groups to drive research progress
Copy of Dallas logo card-2


JUNE 26-27

We will gather the scientific community to hear the latest updates in research and therapy development and provide opportunities to deepen collaborations and develop new ones.

The first day will begin in the afternoon with sessions hosted by Dr. Juan Pascual on the campus of UT Southwestern. The second day will move to our venue hotel - Omni Dallas.



The clinical sessions will feature opportunities to learn more about symptoms and best practices in clinical care from expert neurologists and dietitians.

These sessions are ideal for anyone wanting to understand the patient experience better and how to provide the best care for diagnosis and disease management.



The family sessions will feature information and resources to help patients and families navigate the challenges of this disease across a number of topics as well as provide opportunities to strengthen connection and support across the community.

These sessions are ideal for patients, parents and caregivers, siblings, friends, and extended family members.

Registration will be separate for each day of the Summit so attendees can customize their experience.
We plan to offer hybrid options for both in-person and virtual attendance.

The Omni in downtown Dallas will be the venue for the Glut1 Deficiency Summit with discounted room rates of $239.

check back for more details as planning moves along!