Finding His Voice: Will’s “Talker”

Eight-year-old William “Will” Hagler from Northport, Alabama, is full of joy. He loves all things Disney, playing in water, watching his favorite shows, and enjoying cold weather days. But one of the most exciting things happening in Will’s world lately is something truly special — he’s found a new way to communicate.

Will, who was diagnosed with Glut1 Deficiency at just 20 months old, recently received an AAC (augmentative and alternative communication) device — or as his family lovingly calls it, his “Talker.” For a family who has spent years hoping for a way to better understand what Will wants and feels, this new tool has opened a door.

“We have hoped for the day when he is able to communicate with us in some form,” Will’s mom shared. “This device has given us that.”

The Journey to Finding the Right Fit

Will first began using an AAC device during speech therapy sessions at school, and his speech pathologist quickly recognized how much potential it held for him. Working together with Children’s Rehabilitation Services (CRS), the family began the process of getting one of their own.

After an evaluation and a few months of waiting, Will’s device finally arrived — and his team made sure they knew how to make the most of it. A CRS speech pathologist provided initial training, and later, Will’s mom attended a workshop through their county school system to learn how to personalize it even further.

Will uses a program called LAMP, which was chosen after trying several options to find the best fit. Each program is a little different, and families can work with their speech therapist to choose one that works best for their child’s needs.

A Whole New World of Connection

Now, Will’s device travels with him everywhere — home, school, and beyond. His family has added buttons for all his favorite foods, people, and places, complete with pictures to make it easier to use in daily routines.

“We’re teaching Will that while he may still try to pull our hand to what he needs, he can now tell us using his device,” his mom explained. “It gives him a way to express himself like never before.”

The family has already seen meaningful progress. Will’s confidence is growing, and so is his ability to share more of his personality — something that brings so much joy to those who love him.

For Families Thinking About AAC

For families considering a similar path, Will’s mom encourages them to start by talking with their child’s school speech pathologist or to reach out to their local Children’s Rehabilitation Services program. These professionals can guide families through evaluations, trial periods, and training to find the right fit.

“If you feel like your child would benefit from a device like this, please reach out,” she says. “It has truly been life-changing for us.”

A Grateful Heart

Through all the challenges of life with Glut1 Deficiency — from therapies to hospital visits and the ketogenic diet — Will’s family continues to find gratitude.

“We’ve learned that progress doesn’t always follow the usual path,” his mom reflected. “We can find joy in the most unexpected moments and hope in the uncertainty. For all of these things, we are thankful.”

And most of all, they are thankful for Will — for his courage, his light, and for reminding them every day that strength comes in many forms.

“His smile lights up even the hardest days. Will reminds us what it means to be strong, to find joy in small moments, and to keep pressing on.”

We’re so thankful to the Hagler family for sharing their experiences, and we hope this new way to connect with his friends and family helps Will’s light shine even brighter.