International Epilepsy Day

Today is International Epilepsy Day, started in 2015 by the International Bureau for Epilepsy (IBE) and the International League Against Epilepsy (ILAE). International Epilepsy Day aims to eliminate misconceptions, encourage open dialogue, and create a supportive community. This day is vital in challenging superstitions. It seeks to eliminate discrimination and foster understanding about epilepsy.

There have been some big things to celebrate in the epilepsy community today, and the Glut1 Deficiency Foundation is honored have been part of it as members of the Rare Epilepsy Network.

Epilepsies Stakeholder Letter Sent to President Biden Today! 

A letter to President Biden urging more funding for the epilepsies was sent today, a perfectly timed opportunity for stakeholders across the United States to express our collective desire for more resources and funding for epilepsy research. Read the letter here.

The Senate Launched the First Ever Senate Epilepsy Caucus! 

In more good news today – Senators Eric Schmitt (R-MO) and Amy Klobuchar (D-MN) launched the first-ever bipartisan Senate Epilepsy Caucus. Read the press release here and listen to Sen. Schmitt’s video recording here about his motivation for founding this caucus. Now the epilepsies have champions and a voice in both the House and Senate!

Advocacy YOU Can Do NOW: 

Now more than ever we hope ALL epilepsy stakeholders will ask your Senators and Representatives to join the Senate and House Epilepsy Caucuses. When Congressional leaders hear from their constituents they will act. The more Congressional leaders on these caucuses –  the louder our voice!