International GLUT1 Awareness Day
Join Us for International GLUT1 Awareness Day – July 10
International GLUT1 Awareness Day is coming up on July 10, and this year we’re joining together with GLUT1 organizations and families around the world to celebrate our global community. GLUT1 Deficiency may be rare, but our community reaches across cities, countries, languages, and continents. This year, we want to see where in the world GLUT1 is – and celebrate the people and families who make this community so strong.
Where in the World is GLUT1?
We invite families, individuals with GLUT1 Deficiency, friends, clinicians, researchers, and supporters to participate in a simple global awareness activity to fill social media with our voices!
Create a sign that says:
Where in the World is GLUT1?
[Your City, State/Country]
#TogetherForGlut1
For example:
Where in the World is GLUT1?
Dublin, Ireland
#TogetherForGlut1
Take a photo holding your sign – at home, in your town, near a local landmark, or anywhere meaningful to you – and share it on social media on July 10.
Together, we can create a beautiful global snapshot of our community and show the world that GLUT1 is everywhere.
Hashtags to Use:
Please use these hashtags when posting for International GLUT1 Awareness Day:
- #WorldGLUT1Day
- #TogetherForGlut1
- #GLUT1AwarenessDay
- #MoreThanRare
- #LivingWithGLUT1
Tag GLUT1 Organizations:
When sharing your photos, please tag participating GLUT1 organizations so we can help share and celebrate posts from around the world.
Instagram:
@glut1deficiencyfoundation
@glut1deficiencyuk
@asglutdiece
@glut1enespanol1
@asociatiaglut1
@Glut1Belgium
Help Us Light Up the Map
In advance of Awareness Day, we’re also creating a global GLUT1 map.
Families and community members can submit their location so that every city represented by someone in our community can be added to the map. On International GLUT1 Awareness Day, organizations around the world will be able to share the map and show how far-reaching and connected our community truly is.
Help us light up the globe and show the true footprint of the GLUT1 community. By filling out this quick form, your general location will be added to our live interactive global map for Awareness Day.
- Privacy is our priority – we will only map your city and country
- Please do not include your street address
- No names or contact details are collected
- One entry per person living with GLUT1 Deficiency
Join the Global GLUT1 Zoom
Let’s meet and see our faces and hear our voices!
A special Global GLUT1 Zoom gathering is being planned for families and individuals with GLUT1 Deficiency.
Date: Saturday, July 11
Time: TBD – we are working to find the most convenient time for families across time zones
Who: Families and individuals with GLUT1 Deficiency
Theme: #TogetherForGlut1
More details and registration information will be shared soon.
One Community, Many Places, Shared Hope
Whether you are newly diagnosed, many years into this journey, a parent, sibling, adult patient, clinician, researcher, or supporter, you are part of this global GLUT1 community.
On July 10, let’s share our faces, places, voices, and hope. Let’s show the world where GLUT1 is. Let’s show the world who we are.
#Together for GLUT1.
Resources:
Glut1 Spanish Community
TED talk
GLUT1 Deficiency Foundation:
Osmosis Video: What is GLUT1 Deficiency?
Italian Glut1 Association
Playlist
