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Glut1 Glimpses:  The Blog

Find insights and news that matters to the Glut1 Deficiency community, including events, family features, research snapshots, and special announcements. Find these Glut1 Glimpses below.

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Our monthly newsletters keep you in the know about what's happening at the G1DF and in the community as we work hard to bring help and hope to patients and families.


The blog

Glut1 Glimpses

Triheptanoin and Acetazolamide

Happy summer to everyone! In this edition of Science with Sandra, I would like to highlight two manuscripts that have recently been published by Dr. Juan Pascual...
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European Glut1 Conference Summary

Summary of the European Glut1 Conference held in Aschaffenburg, Germany on June 15-16, 2023Written by Sandra Ojeda, PhD - Science Director for the Glut1 Deficiency Foundation Day...
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Glut1 Deficiency Foundation Awarded PCORI Funding to Build Research Capacity

The Patient-Centered Outcomes Research Institute (PCORI) has selected the Glut1 Deficiency Foundation for a $249,920 Eugene Washington PCORI Engagement Award for a special project titled “Research Ready: Developing a Strong PCOR Foundation in...
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Updates from Dr. Joerg Klepper

Hello Glut1 Deficiency community! This month I would like to share with you that the Glut1 Deficiency Foundation’s executive director Glenna Steele and I will attend the European...
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Miss Amazing – Jyl

Jyl is many things: a public speaker, two time Indiana Miss Amazing winner, and a recent college graduate. She’s also the 15th person to ever be diagnosed...
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