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GLUT1 Glimpses: The Blog
Find insights and news that matters to the GLUT1 Deficiency community, including events, family features, research snapshots, and special announcements. Find these GLUT1 Glimpses below.
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Our monthly newsletters keep you in the know about what's happening at the G1DF and in the community as we work hard to bring help and hope to patients and families.
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GLUT1 Glimpses
Millie’s African Adventure
*also published in the Summer edition of the CHOP Keto Newsletter Since Millie was diagnosed with Glut1 Deficiency Syndrome and began the ketogenic diet at CHOP in...
Candlelight and Crafting for a Cure
GLUT1 mom Ashley Moore is planning some special activities this fall, combining her love of crafting with her dedication to supporting the GLUT1 Deficiency Foundation in honor of her daughter, Jaisa....
Board Member Spotlight: Leigh Hopkins
This month, we’re proud to shine the Board Member Spotlight on Leigh Hopkins, an economic development researcher and mom to Cameron, who was diagnosed with GLUT1 Deficiency...
SUDEP Action Day
SUDEP Action Day is coming up on October 15th and is a crucial time to raise awareness about Sudden Unexpected Death in Epilepsy (SUDEP). This year’s theme,...
Launch of GLUT1 Deficiency Collaborative Care Network
The GLUT1 Deficiency Foundation is excited to announce the launch of a new initiative to recognize and support excellence in medical care for our community: the Collaborative Care...