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Glut1 Glimpses: The Blog
Find insights and news that matters to the Glut1 Deficiency community, including events, family features, research snapshots, and special announcements. Find these Glut1 Glimpses below.
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Glut1 Glimpses
European Glut1 Conference Summary
Summary of the European Glut1 Conference held in Aschaffenburg, Germany on June 15-16, 2023Written by Sandra Ojeda, PhD - Science Director for the Glut1 Deficiency Foundation Day...
Glut1 Deficiency Foundation Awarded PCORI Funding to Build Research Capacity
The Patient-Centered Outcomes Research Institute (PCORI) has selected the Glut1 Deficiency Foundation for a $249,920 Eugene Washington PCORI Engagement Award for a special project titled “Research Ready: Developing a Strong PCOR Foundation in...
Updates from Dr. Joerg Klepper
Hello Glut1 Deficiency community! This month I would like to share with you that the Glut1 Deficiency Foundation’s executive director Glenna Steele and I will attend the European...
Miss Amazing – Jyl
Jyl is many things: a public speaker, two time Indiana Miss Amazing winner, and a recent college graduate. She’s also the 15th person to ever be diagnosed...
Participate in a Biomarker Research Project
COMBINEDBrain is traveling to a conference near you! COMBINEDBrain is a non-profit consortium of over 60 patient advocacy groups for rare, genetic neurodevelopmental disorders. They recognize the...